Well, as many of you have read, we are back in the hospital. Gavin spiked a fever of 105 early this morning and had a very scary episode while driving to the ER. After turning off his TPN he turned a corner and seems to be doing better. Cultures were drawn but we are thinking this is just the MAS or chronic inflammation that the lipid in his TPN causes.
We have made some progress on the Omegaven but have hit a road block and are needing duPont to be willing to fund the experimental drug. Gosh... we really need this to happen. The lipid is keeping him alive but it is destroying his body.
So once again we just wait to see if cultures grow.