Did you go to school for photography?
Thanks, but no. I use a small average to below average digital camera. I just take a million shots and only share the best. I never use flash and edit my photos with either our Mac or Picnic.com.
What is Gavin's prognosis and what can you expect the future to hold for him?
According to medical science Gavin has a degenerative disease and our mission right now is to try to slow the progression of the disease. There is no cure. With that said Adam and I believe anything can happen -- and at this point we are all in favor of a miracle. We believe that all of our days our numbered and when it's Gavin's time to go, he will go be with Jesus -- at the age of 3 or 83. When God wants him Home Gavin will go Home.
How do you handle Madi's questions and fears about her brother?
This is a very interesting question that made me really think. Truth is, Madison has only ever had a sick brother and in her small mind she often thinks of other children like Gavin as "the normal." When we say, "Madi, Gavin has a fever and has to go to DuPont," the first thing she does is smile and ask, "is Child Life open?" Over the next year or so I know things will be changing in her world and life may get confusing for her, but right now we do our best to keep life normal for her even if it's while living at the hospital.
There are a few more questions that I'll answer another time. For right now we are home and happy. Thanks for your support this past week.