So I'm going to try to explain what the plan is going to be for the next few months. Basically it all comes down to this -- there is nothing more that we can do for Gavin's body, specifically his bowels, which is the source of his infections and the biggest issues that will make him very sick, very fast and from which he may not recover. With that said the only thing that is left to do is have Gavin evaluated to transplant.
We have started the process of sending our boat load of records over to Pittsburgh Children's Hospital to start the process. It doesn't mean Gavin will get a transplant but it also doesn't mean he wouldn't.
With all this said my heart and mind is battling with the question of where do you draw the line? I will not go into that anymore because it is such a personal issue for Adam and I, but know that this is a huge battle for our family. Everything that we do has a pro and a con. It's hard to watch our little boy suffer and it's even harder to make the right choices for him -- something I pray that other families will never have to face.