Tuesday, June 24, 2008

The Scoop...


So I'm going to try to explain what the plan is going to be for the next few months. Basically it all comes down to this -- there is nothing more that we can do for Gavin's body, specifically his bowels, which is the source of his infections and the biggest issues that will make him very sick, very fast and from which he may not recover. With that said the only thing that is left to do is have Gavin evaluated to transplant.

We have started the process of sending our boat load of records over to Pittsburgh Children's Hospital to start the process. It doesn't mean Gavin will get a transplant but it also doesn't mean he wouldn't.

With all this said my heart and mind is battling with the question of where do you draw the line? I will not go into that anymore because it is such a personal issue for Adam and I, but know that this is a huge battle for our family. Everything that we do has a pro and a con. It's hard to watch our little boy suffer and it's even harder to make the right choices for him -- something I pray that other families will never have to face.

7 comments:

Anonymous said...

I am so sorry. That is tough, but you are tougher. I, for one, would never, ever judge you for any decision you would make on Gavin's behalf. Anyone that knows you KNOWS that you have done all you can and MORE for your son. I will pray that whatever happens is the best outcome for Gavin. His suffering will not be in vain...of this I am sure.

kate & gavin #2

Anonymous said...

Try not to think about all the decisions yet, see how the whole Pittsburgh evaluation goes; you will have lots of time to make many decisions.
The line will be drawn by you and Adam, as it should be; the only one whose opinion matters already understands.
EP

Anonymous said...

I know what you are going through, we have been there. We are praying for you, you are amazing parents and are doing everything for your son. Please know if you need to talk. Iam here form you!!!
Thinking of you.....
Sandra

Wendy Tobias said...

Karen & Adam,
I can't even imagine what it is like to deal with everything you have been dealt over these past 2 years, and now having to make the tough decisions ahead of you. You guys are absolutely amazing parents and have done so much for Gavin. I will pray for continued strength for all of you as you face the weeks ahead. God will give you the strength that you will both need to make the best decisions for Gavin and your family. I wish there was something more I could do for your family. I will continue to pray for you and ask our friends to do the same.

Stowelighthouse said...

Karen and Adam, Thank you so much for sharing your struggle here. My best friend of 16 years is now preparing to say goodbye to her 17 year old daughter. This child has never spoken a word. The many years of tube feeds, surgeries, hospital stays, leaky gut, infections...now the doctors say that there is nothing else that they can do. I want to share this with you...it was written by Roy Lessin...
"The Impact of One Life...
When a stone is dropped into a lake it quickly disappears from sight, but its impact leaves behind a series of ripples that broaden and reach across the water. In the same way, the impact of one life lived for Christ will leave behind an influence for good that will reach the lives of many others."
The ripples of your family are reaching and blessing the lives of so many! I am praying for all that concerns you. Be blessed and be safe in Him. ~Debbie Heisey

Aunt Pat said...

Karen,
I have been praying extra hard for you these past few days. For you in particular. As your aunt, I love you dearly and wish there was something I could do to ease your burden. We all are in awe of your strength and wisdom through this. And God has a plan even though the journey is harder than any of us can imagine. I just want you to remember that there are 100's of people praying for you and your family. And hopefully that will give you some comfort.

Love,
Aunt Pat

Shari said...

Oh Karen! I know your mind must be reeling with so many thought, emotions, and feelings. Know you are in my prayers daily! I wish there was more I could say or do! Love to you, hon!