Wednesday, July 16, 2008

Update...

After working hard on Gavin's line yesterday and throughout the night it still is not working. It looks like Gavin will have to have a new line placed, which just is so horrible. This line is only 2 weeks old! As a last dich effort we are going to try some Hydro Chloric Acid to see is we can "eat" the crud off the wall lining -- We'll have to see.

Gavin is still looking pretty bad. Fevers are still gone and cultures are still negative. I talked a little more with the GI Attending about the idea of Gavin getting a bowel/liver/stomach transplant. She was very comforting -- if that's even possible in this situation.

We did have an appointment today with a Mitochondrial Doctor at St. Christopher's in Philadelphia but unfortunately we had to cancel.

Thanks to all our new friends that are praying for Gavin! Thank you to all who made us meals for this admission -- they have all been very yummy!

5 comments:

Anonymous said...

Have you heard Natasha Bedingfields song "Pocketful of Sunshine"? the words are perfect for those frustrated by life and uncertainty, yet determined to succeed. I will be singing for Gavin(can you hear the screaching from Indiana?) and all that want to be taken to "a secret place, a sweet escape, to better days"...wishing a quiet, productive day and SUNSHINE
Katrina Nagy

Heather said...

Our thoughts and prayers are with you again today, as you wade through the trenches.

Kerri said...

I just found your blog through 6yearmed, and I'm praying for you and your family. I admire the joy you manage to maintain in your life despite your troubles, and the positive outlook you exhibit. Gavin and Madison are adorable and deserve the best. Looks like they got it - at least in the Mom department!

Chelle Cates said...

I am so sorry Gavin is having a rough time. You continue to be in our daily prayers and you know if you have any questions about multivisceral I am here for you. Thinking of you....Chelle Cates

reesha said...

Get Better soon Gavin!