Thursday, July 31, 2008

Update...



Today I was able to rescheduled Gavin's appointment at St. Christopher's in Philadelphia at the metabolic clinic.  He is penciled in for the 7th of August and I am prying that He can be home so we can go.  Adam and I are feeling more desperate for this appointment than ever.  We need some direction as to his condition in order to make a more informed decision on going to Pittsburgh.  The transplant evaluation in an invasive 5 day inpatient stay and I don't want to put Gavin through that if we feel transplant is not in Gavin's best interest.

Gavin started with a fever today of 101, which really isn't very high but still is raising my stress level.  His gastric output is high and very smelly, which just screams infection.  We just need some time here at home.  I don't think any of us have actually adjusted to being home yet and it has been 4 days!

Thanks for your continued support and prayers!

4 comments:

Kirsten Yarnall said...

We wil be praying for you to make it to the 7th.

Anonymous said...

I hope, hope, hope you make it to the 7th! It's not far away, but I'm sure it's an eternity at the same time. I think it's awesome that you're getting new eyes to look at Gavin. I hope they have new ideas and encouraging news. I'll pray for the fever and the *smellies* to go away...

kate.

Heather said...

We pray for time at home,direction and God's grace to bring peace to your restless mind and heart.

Shari said...

I am praying he stays home until the 7th. I pray the fever goes away and he remains relatively healthy until the day of the appt.