Monday, September 8, 2008

Day Two Update...

9

It has been a very quiet day. Gavin is acting more like himself and his labs are looking better everyday. His bilirubin has come down so he is no longer looking yellow, though his liver and spleen are still very large, which is causing him some pain.

We were able to draw blood back on the one lumen of his central line that was giving us problems yesterday so that made things go nice and smooth today and once again we are still getting negative cultures. We really will not know for sure if the fungus is cleared until the seven day course of Ampho locks is complete.

Someone, not knowing my fragile state today, ordered Gavin to get OT and PT on a daily basis. This did not go over well with me as I just want some space. I know Gavin needs help with his development, but the poor little guy looks like he just consumed 15 pizzas and a case of soda -- If I were him, a workout would not be my idea of a good time. I asked them to leave -- nicely of course.

Today was a very rough day for me -- mentally more that physically. Sometimes our reality flashes before my eyes and is pretty much slaps me in the face and reminded me that this is not the life I ever imagined for my child, my family or myself. With that said today as we walked past the intensive care unit I was humbly reminded that things could be worse. There has to be a way to enjoy life even if it mean being confined within these walls -- I just need to find it.

Thanks for keeping Gavin in your prayers!

6 comments:

Reagan Leigh said...

Gorgeous picture (despite the circumstances)! I can only imagine how rough it is for you and your family...spending all of your time in the hospital away from home. I know there are times when Reagan is having hundreds of seizures a day that I begin feeling sorry for myself (but mostly her) and then I see other children in so much worse shape and I realize that as bad as things are for us...they really could be so much worse! It's tough. None of these kiddos should have to go through this. We just have to trust in God and His plan...but sometimes it's so much easier said than done! I've been thinking and praying for you often.
Tera

Anonymous said...

Karen, sorry that i haven't stopped by in a while, but you are all in our thoughts and prayers! I hope tomorrow is brighter and you are filled with a second wind to help you get through this hospital stay! We are praying for Gavin and think his new chair is the best! bECKY gARDNER

Shari said...

Despite his circumstances he always has a smile! It's OK to have rough days. My goodness girl, you are going thru it and for a long time! You are always on my mind and in my prayers!

Mindy said...

Amazing Picture! (of course as all of your photos are drop dead gorgeous!)

It's nice to see Gavin's smile again. I couldn't imagine living the life you do with as much grace as you have. I know it's tough but you and your family are amazing. Praying for Gavin and hoping he gets better soon!

Kirsten Yarnall said...

I don't think there is one person who thinks you have not earned a few "pity yourself" days. Few of us reading all of your blogs can imagine what your everyday is like. Few of us would want to take your place. God is our strength, our comfort and our helper for these reasons. Only God can fully understand the heartache and pain that you and Adam (Madi too) go through on a day-to-day basis. Continue to lean on Him for the bigger picture. Continue to call on Him for answers to the questions you must always have. Always trust that He is in control of the situation even when you may not be able to see His hand. We love you guys and continue to pray for you everyday. May blessings come in big ways today.

Anonymous said...

Karen: I can't even imagine what your days are like. Don't be down on yourself when you feel like you can't take another step. Know we are all here, cheering you on... holding you up and praying for your strength to make it yet another day. Hang in there. We love you and pray continually for all of you. ~Marily & Randy