Today was a fun day here at duPont. They had lots of activities for the kids and both Madison and Gavin were able to dress up and trick-or-treat throughout the hospital. Gavin is doing pretty well but his swelling, which is causing his difficulty breathing, is getting much worse as they didn't want to give him any lasix today because they feel that most of his breathing discomfort is from his swollen organs. He has been sleeping now for almost 5 hours -- which just like yesterday has me feeling a bit uneasy. We are hoping to be home on Monday -- but we will just have to wait and see.
Our friend Alex who struggles with some of the same issues at Gavin became a TV star today. Click here to see his dream come true!
Way to go Alex!