Tuesday, October 21, 2008

Good To Be Home...

We were able to come home yesterday evening after Gavin received his blood transfusion. His cultures never grew anything but that's not always a good thing. It's it much easier to treat if we know what we are treating. We all fear that this is the fungus messing with us. Sometimes in the early stages of fungal infection, at least for Gavin, it can be hard to grow on cultures and we just have to wait and see what happens. Gavin continues to retch and sometimes vomit his meds, so either his belly has further deteriorated or he is fighting a bug -- I'm hoping for the bug.

We talked about putting Gavin on the IV Ampho on a more permanent basis but it that happens we would have to accept the consequences like liver and kidney failure as well as a super bug that we would not be able to treat. The doc just kinda threw it out for us to think about.

At the end of November Dr. Schoffner from Atlanta will be coming to duPont and although he cannot actually see any of the patients he is willing to review Gavin's history and speak with us and make recommendations. Dr. S is well known in his study of Mito and Metabolic Disorders.

Thanks as always for praying for our family!


Anonymous said...

Welcome Home!! Boy, the permanent Ampho IV is a tough decision...but I guess you're kinda getting used to tough decisions, eh? I'll hope for a stomach bug...that feels weird to say!
That's awesome that this doc is willing to consult. I hope he has some good input.
Enjoy these Fall days!
kate & gavin #2

Shari said...

I am so glad you are home! I pray it can be longer than 15 days! I know you will make the best quality time for your children. Karen, the lessons you have taught me are so many! I appreciate your blogs!

Heather said...

Happy Homecoming.We are glad you are back where you all belong.

Becky said...

so glad that you're home again and hope that you can identify the bug that is making Gavin not feel so great... hope you can enjoy the beautiful weather! We are praying for you guys!