Tuesday, December 9, 2008

Home...

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After many tears, frustrations and feelings of totally despair we are finally home.  Gavin got his new line early this morning and we were able to leave right after.  He has come home on three antibiotics one which ends in one week, one in ten days and the antifungal in three weeks.  Dr. R is going to come up with some type of plan to keep us home over Christmas, but obviously there are no guarantees.

We are now using Zofran to help Gavin with his retching, which I think is working but it's kinda hard to tell.  We are also using suction hooked up to his gastric tube, which I know makes a huge difference for him.

Thanks to everyone who continues to support our family.  Special thanks to our second family at duPont, who will never understand the huge impact you have on our lives on a daily basis.  We are so grateful to the compassion we are shown by the doctors, nurses and staff. 

11 comments:

grey like snuffie said...

WOO HOO! Lots to cover in prayer. Christmas miracle!

Jodi R. said...

Karen, I am so glad you are home, Your family is always in our thoughts and prayers. Gavin continues to amaze me. I hope you all get the needed rest that you deserve in your own home:) Lots of love and prayers
Jodi

kyna said...

so gla you are home! The Leyvas have you on our prayer list every day. xoxo

Anonymous said...

YAY!!! I'm so happy you're home...and I'll continue to pray that you STAY THERE :-)
kate.

Karen said...

Glad you are home. I don't comment very often but I read your updates regularly and think of you all often.

Hugs from a fellow Karen. :-)

Becky said...

So glad that you are all at home! We had a peekhole into the craziness of your world last week after an ambulance ride and an ER trip and all we can say is that it has doubled our prayers for the four of you! Hope you guys can enjoy family time together on your own terms and get lots of rest in too!

Anonymous said...

Yea! So glad you are home!
I'll keep praying you stay put for awhile.
Enjoy, you all deserve it!

Debbie S.
CT

Heather said...

So glad you are home.Sorry I haven't been "by" lately as we have been in our home away from home as well.You are never far from thought and always,always in our prayers.

bryan said...

Glad you are all home. Continued Prayers.

Anonymous said...

yey!!!! I love you..see you soon!!!

Anonymous said...

I'm still hoping and praying and wishing that Christmas will be at HOME for you. Your entire family - but Gavin especially - have been in my fervent prayers. And, so you know, my *fervent prayer* list is short....and kinda selfish. ;-)
I know this is such a hard time for you and Adam. I wish you peace and clarity and for God to heal your breaking heart.
xoxoxoxo
kate.