After many tears, frustrations and feelings of totally despair we are finally home. Gavin got his new line early this morning and we were able to leave right after. He has come home on three antibiotics one which ends in one week, one in ten days and the antifungal in three weeks. Dr. R is going to come up with some type of plan to keep us home over Christmas, but obviously there are no guarantees.
We are now using Zofran to help Gavin with his retching, which I think is working but it's kinda hard to tell. We are also using suction hooked up to his gastric tube, which I know makes a huge difference for him.
Thanks to everyone who continues to support our family. Special thanks to our second family at duPont, who will never understand the huge impact you have on our lives on a daily basis. We are so grateful to the compassion we are shown by the doctors, nurses and staff.