We have been home one week and unfortunately things aren't as great as we hoped they would be. We noticed Gavin's color dropping over the last couple of days and his eyes are turning a but yellow. Last night he started with a slight fever and now that slight fever has turned way more concerning. We are awaiting blood cultures and were instructed to bring him in if he looks any worse. We are really hoping to treat this at home -- if there is something to treat. We have some fun plans this week and Adam and I will be really disappointed if those plans turn into a trip to DuPont.
This weekend we went to a Christmas party at Gavin's home care agency. Toys for Tots sponsored some great gifts and even Santa, though a but off looking was there. The kids had a great time. Speaking of nursing, Adam and I have decided to take a break from our nursing care. We are just really looking for some normalcy when we are home. Thanks to both our wonderful nurses. I know you read this and know that you have helped us through so many rough times and will never be forgotten!