Tuesday, December 16, 2008

One Week...

We have been home one week and unfortunately things aren't as great as we hoped they would be.  We noticed Gavin's color dropping over the last couple of days and his eyes are turning a but yellow.  Last night he started with a slight fever and now that slight fever has turned way more concerning.  We are awaiting blood cultures and were instructed to bring him in if he looks any worse.  We are really hoping to treat this at home -- if there is something to treat.  We have some fun plans this week and Adam and I will be really disappointed if those plans turn into a trip to DuPont.

This weekend we went to a Christmas party at Gavin's home care agency.  Toys for Tots sponsored some great gifts and even Santa, though a but off looking was there.  The kids had a great time.  Speaking of nursing, Adam and I have decided to take a break from our nursing care.  We are just really looking for some normalcy when we are home.  Thanks to both our wonderful nurses.  I know you read this and know that you have helped us through so many rough times and will never be forgotten!  




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7 comments:

grey like snuffie said...

praying

Shari said...

Praying for you.

Anonymous said...

Thanks for updating. So sorry Gavin is not doing better. I am praying for you guys. I don't suppose they'd let you just "pop" in for an "outpatient" transfusion? Probably not :-(
I hope he turns a corner and feels better.
God Bless you all.

Kaitlyn said...

Oh, goodness. Thank you for the update. Best wishes, you're always in my prayers.

Misty said...

he is so precious! i can see his smile through the mask :)! i have been thinking of you and your family constantly!

Anonymous said...

It was such a pleasure meeting Gavin in Blue Bell the other day when he stopped by for daddy's office Christmas party. Can't imagine what he thought about all the crazy ladies getting in his face with silly questions :o) He is a great, very cool kid and he will overcome this hurdle as well. Don't know where he gets the strength but he just does. His smile lights up the world. Praying for him and just KNOW he'll be home for Christmas

Reesha said...

checking on you guys daily. Praying that you will all be home for xmass day and longer.