Monday, December 8, 2008

Please, Let Us Go Home....

Adam and I have both reached our limit. We are ready to get the heck out of this place. It doesn't look like Gavin will be getting the line today. I'm so frustrated and disappointed. I feel like screaming to all the medical personnel in this place ,"do you realize you are taking another day away from our family!" I understand that everyone is looking out for Gavin but it's hard to see that sometimes.

Gavin's counts are still low and his belly is still swollen. We are going to be cutting his lipid in half tonight to see if we can cut back on some of his inflammation. Hopefully that will provide his organs with a much needed break and take some of the pressure off his belly.

Thanks for your continued prayers.

8 comments:

Anonymous said...

I love you..hang in there..you are in my thought every moment..Love your sister..who finally figured out how to leave comment a year later.

grey like snuffie said...

praying as He leads, I can not imagine BUT He KNOWS, more intimately than you. God of mercy, God of grace, work a miracle in this family, be their strength, line up medical care in orderly fashion to meet little Gavin's needs, in Jesus name, AMEN Will continue to pray.

Reagan Leigh said...

I'm so sorry for everything you are having to deal with. I know a lot of times it feels like no one wants to help your child but you! It's SO frustrating. Continued prayers for a new line and a trip back home for all of you!

Holly said...

Karen,

I don't know if this would apply to Gavin but when Caleigh's liver was bad we cut dextrose down to 12% and only did lipids on mon., wed., and Fridays. She was TPN dependent at that time. Granted she wasn't getting all the nutrition that she needed at least her liver survived.

I'm sorry you have to stay in the Inn another night. It just doesn't seem fair that you have to share your child with everyone else. I hate it and I hate it for you.

Hope for breaking out tomorrow.

Shari said...

I hear your frustration! I can only imagine it gets so hectic and yet boring in there. Praying that line can be in soon and then home in your own beds. Praying as always. Love you!

Nicole, Drew, Jack, Megan, Sophie, and Lucy too said...

Stay strong, we are praying for you and your family! We will say extra prayers for a new line and discharge papers home ASAP!

All the Marletts

Anonymous said...

Your Morning Star family continues to lift you up in prayer. We love you guys!

Heather Nicole said...

Hang in there Karen. Praying for your sanity today! Love you :)