Tuesday, December 23, 2008

Positive Cultures...

This afternoon we got word that Gavin's blood cultures are growing fungus and a gram positive coxi, which is probably the same staph infection from his previous central line site. Certainly makes us sad but at the same time at least now we know what we are treating. Gavin is looking a little better after getting blood, though he still is looking jaundice and we were warned that he may even look a bit worse due to the increased blood volume.

Our plan right now is to go home in the morning. We will continue all three iv meds that are running now and also add the Amphoteracin locks to try to clear the yeast. The locks have never worked but they may buy us some time at home for the rest of the week. Unfortunately, because Gavin has yeast in his line there is always the chance that he will get very sick and need to come in to have the line pulled right away. I think at this point we will try to get cultures again on Friday and then decide from there what the next step will be.


I'm very ready to end this day. It's been a long one. Gavin is peacefully sleeping in his crib and Madi and daddy are safe at home. Now it's time for me to attempt a few hours of sleep.

7 comments:

Misty said...

i am thinking of you and your family and praying.

Heather said...

Sending you our love and prayers.

Angela said...

Oh Gavin, we were so strongly praying that you would be feeling well for Christmas. We hope that you guys will be able to enjoy Christmas at home as a family. We will continue to pray for Gavin's health as well as added strength for your family. Merry Christmas Eve and many blessings from our family to yours.

Anonymous said...

This morning our grandson was singing "Strength will rise as we wait upon the Lord, wait upon the Lord..." I pray you will sence His Presence and feel His Strength today. Thinking of you.....~Marilyn M

Lena said...

Have you guys heard about Kelly Dorfman? She's a nationally known nutritionist who's specializing in kids with complicated health issues and learning disabilities. She's been exceptionally helpful to our friend's son, who born premature, suffers from numerous GI challenges. She is in MD but does consultations over the phone. You might want to pick her brain in terms of what she might recommend for Gavin that his clinicians might not be considering. Her number is 301.340.2239 You can also google her. She has a website. Good luck - you're always in our thoughts and hearts!

Anonymous said...

I am so sorry to hear Gavin is having a very rough time. He is in my thoughts often. My son is also TPN dependent and he has been recently hospitalized numerous times with gut bugs. The infectious disease doc tried a few different things. We were iv micafungin and ampho lock for 14 days for yeast. Iv cipro for 14 days was for the bacteria. We were able to save the line. We were discharged after 2 weeks then had to come back after a week and a half due to gram negative rods. That was treated for 2 weeks with iv cefapime and even though line was salvaged, elected to pull the line to be on the safe side and new one inserted on last day of antibiotic. Then came back again for different gram negative rods on new line. Again treated with iv cefapime. At this point in time the GI doc recommended doing ethanol locks. He said his kids on these locks haven't gotten infected. This kills both bacteria and fungus due to protease action (nurse gave me a copy of the research paper). We have been out of the hospital for 3 weeks now and have been crossing my fingers. Good luck.

Kaitlyn said...

I don't think you'll ever get sick of me saying this, so I'll keep on doing so: always, always praying for you.