Tuesday, December 2, 2008

Same Old Thing...

One of these days I wish I could post on this blog something new and amazing but I guess that will just have to wait. Cultures are still positive for all three bugs. The doc is not going to give the ampho locks long to work as Gavin is basically a ticking time bomb.

We had yet another meeting of the minds today -- this time with our main doc and the GI group. The GI team is at a loss of ideas as well. They mentioned trying to get compassionate release from the FDA of a popular motility drug that was taken off the market for cardiac complications. We'll see. They were thinking that at least that drug might help us to get medications into Gavin. I'm not sure if they are actually going to pursue this or not.

Gavin will be headed down stairs at some point in this stay for an echo and ekg just to check and see how his cardiac function is. The heart is yet another organ system that can be effected by his underlying issues, not to mention he has been hanging out with fungus near his heart for over two weeks.


Thanks so much for your prayers -- they make such a difference.

8 comments:

Merin said...

our sons were born a week apart. we are praying for your beautiful boy.

Anonymous said...

Praying, praying, praying.
I wish there was more I could do.
This is just too much for anyone to handle...you guys are amazing to so many. My list of hopes for you is too long for this little comment box. :-(
xo
kate.

ka1t_lyn said...

Never, ever going to stop praying.

Anonymous said...

Prayers coming in from California. I hope things improve soon.
Kathleen

Jenkins said...

A friend forwarded me your blog because I was searching for information on G-J tubes and vomiting problems, my 19 month boy is having problems. After reading your last several posts, I know that our sons' circumstances (or diagnoses) are not the same.
I did want to let you know that I am praying for you, your little guy and the doctors. Everyone needs strength, patience and wisdom.
Oh and I could not forget to mention that the pictures of him are beautiful...just precious.
Sincerely,Carrie

Heather said...

Fight on little Gavin and entire Owens family.You are doing an amazing job in the face of such adversity and I for one, am so proud of you all.Prayers continue.

Nicole, Drew, Jack, Megan, Sophie, and Lucy too said...

Stay strong! We are always praying for you and your famiy. We'll say some extra prayers for patience and answers! It never hurts to ask, right!

All the Marletts

kyna said...

the Leyvas love you, and are praying