Some days are harder than others. There are days I seem to forget the issues we are dealing with and I am able to just enjoy life and move forward -- this is not one of those days. I had a very difficult talk with Gavin's doctor this morning. I'm not going to go into details because it is just to complicated to write out -- not to mention just to painful.
Gavin is doing much better since we started the two antibiotics and one anti fungal. As we thought, he needs blood and he will be transfused this afternoon. His liver numbers are looking a bit better but still not good. His bili is still high and Dr. Raab kinda prepared me for the colors Gavin may start to turn in the future. If Adam and I are just prepared for what he is going to start to look like I think It will be a little bit easier. His liver is really starting to feel the effects of his long term TPN use, which is something that we were aware can happen.
Please say extra prayers for Madsion as well. As she gets older I think all of this is a little bit harder on her. I often wish I could be in two places as once. She is staying with my mom today, giving her a much needed break from Hotel Dupont.
For now we will just wait on cultures but either way, positive or negative, we will go home on IV antibiotics to get Gavin through the next week. I'll be sure to keep you all posted.