Tuesday, January 6, 2009


Sorry for the lack of updates yesterday but the word on the street is that we are home.  We were discharged late last night after a chaotic day and some misunderstandings.  The first thing was the ultrasound - it showed a few things.  Again it showed that Gavin's liver like his spleen is down to his pelvis, which is huge!  The radiologist said ti also looks the the bile buts have increased sludging, even from the last film last week -- this is from TPN.  They took a look at the gallbladder and determined that ti is not infected at this time so we will just sit tight on this new issue.

Now, about that small bowel follow through.  It didn't happen, but only because I canceled it.  When all the details of the procedure were spelled out to me I was not aware of a few things that would really make Gavin uncomfortable.  That along with the fact that Gavin's doc is away I think it's just best to wait.  Plus Gavin is still not feeling well, so I can't put him through even more pain just for the convenience of having the procedure done inpatient.

Yesterday we also got to spend some time with friends who will be outpatient tomorrow.  This really was the highlight of my day.  Madison got to play with a  little boy who she is totally smitten over and I got to talk with another mom who knows exactly how crazy this life is.  Very cool. Thanks so much Katie for being a great friend.

So here we are -- Gavin was discharged, but with fevers.  We are treating him as if he has a fungal infection, though no cultures grew out, we are just going by his symptoms.  So here we are at home again with, what feel like a million IV meds to run.  

It's ok.  There's no other place I'd rather be right now.


Anonymous said...

I wanted to share a verse that Sairra had at school yesterday. It speaks about our life right now. Then I thought of you guys. I hope it brings peace and some sort of comfort during all these times you face.
Glad your home. I'll try to get Madison's thing done soon.

1 Peter 1:6-7 (New Living Translation)
6 So be truly glad. There is wonderful joy ahead, even though you have to endure many trials for a little while. 7 These trials will show that your faith is genuine. It is being tested as fire tests and purifies gold—though your faith is far more precious than mere gold. So when your faith remains strong through many trials, it will bring you much praise and glory and honor on the day when Jesus Christ is revealed to the whole world.

Heather said...

The confines of home are FAR better than the confines of the walls of the hospital.Room to breathe.Room to move.Room to just be .... without the eyes of others.Soak it in.Fevers and all and just breathe.Peace and strength to you, as always.

Becky said...

So glad you are all at home and able to have some breathing room...we are praying for you to get have the most enjoyment possible during this time of freedom from the hospital walls!

Shari said...

Home is so much better than the hospital! I am praying for your little family as always. Forgive me for not commenting more this week. I have kept abreast of everything and continued to pray! Hope the rest of your week blessed!

Anonymous said...

It is always a pleasure to lift your family up in prayer. I am praising God that you are at home right now. Be blessed and be safe in Him. ~Debbie Heisey

Angela said...

Gavin, we pray that your little body becomes free of all pain and discomfort. Enjoy your time at home!

Nadine said...

Joining my heart with yours as we pray and fast for new breakthroughs. Can't even imagine the roller coaster you've been on. Praying that God's love is so very real and present with you. He is our healer and nothing changes that. We just have so very much to learn about the mystery of receiving this gift. But we will never give up!
I'm proud of you for all you have endured in loving your son.
Nadine (Hope)

Anonymous said...

Our thoughts and prayers are with all of you during this difficult time. We are happy you are home and that you were able to share your experiences and emotions with someone who truly knows what it is like. I like the Bible verse which the previous comment contains. It is a verse I wanted to share with my mother, who has recently lost two sisters and now another is about to go Home also. Our tribulations, pains, and sorrows which we experience in our life now are nothing compared to His Promise for Eternal Life with Him. Once again, we are all praying for you!!!
In Christ's Love,
Ron and all the staff at MARC

Anonymous said...

You guys truly amaze me. It is nice to see you guys in church when your able to come. I do get concerned when I dont see you and it is nice to be able to come on here and check out what is going on. Karen you have such a way with words, that you are able to get across what you are feeling.
In his GLory, Julie Cordwell