Sorry for the lack of updates yesterday but the word on the street is that we are home. We were discharged late last night after a chaotic day and some misunderstandings. The first thing was the ultrasound - it showed a few things. Again it showed that Gavin's liver like his spleen is down to his pelvis, which is huge! The radiologist said ti also looks the the bile buts have increased sludging, even from the last film last week -- this is from TPN. They took a look at the gallbladder and determined that ti is not infected at this time so we will just sit tight on this new issue.
Now, about that small bowel follow through. It didn't happen, but only because I canceled it. When all the details of the procedure were spelled out to me I was not aware of a few things that would really make Gavin uncomfortable. That along with the fact that Gavin's doc is away I think it's just best to wait. Plus Gavin is still not feeling well, so I can't put him through even more pain just for the convenience of having the procedure done inpatient.
Yesterday we also got to spend some time with friends who will be outpatient tomorrow. This really was the highlight of my day. Madison got to play with a little boy who she is totally smitten over and I got to talk with another mom who knows exactly how crazy this life is. Very cool. Thanks so much Katie for being a great friend.
So here we are -- Gavin was discharged, but with fevers. We are treating him as if he has a fungal infection, though no cultures grew out, we are just going by his symptoms. So here we are at home again with, what feel like a million IV meds to run.
It's ok. There's no other place I'd rather be right now.