I really have nothing to post. Gavin is still running high temps and this time the Tylenol didn't bring it down at all. Clinically I think he looks worse, but his culture is still negative. We are going to give another IV med to try to help with the fever and make him feel a little better.
The IVIG went well yesterday and he actually seemed to be feeling a little better after the infusion, but that was short lived
I'm here alone with Madison today and to be honest I am so tired. Thankfully, the Child Life program is open today so I just dropped her off, where she hopefully will have a fun filled day of play time.
I am so frustrated and tired of all this. I just wish we could have the next year spelled out for us -- I want to know exactly how things are going to go, which I know, no one can tell us. We are just looking for some peace amongst this chaos -- I know it's there, I know He is there, it's just so hard to find sometimes.