Wednesday, January 14, 2009

One Week - One Day...

This week has gone by so fast, which I guess is a good thing.  Gavin is holding his own, certainly getting tired, but still stable.  He is still on all three IV antibiotics/antifungal, which seems to be keeping infection at bay.  He still is running occasional temps but nothing that has us to worried.  Things that do have us concerned are his low heart rate.  he has been alarming every time he falls asleep with heart rates down in the 50's and below.  This can be caused by several things, one of which is the IV amphoteracin and the other is exhaustion.  When I say exhaustion, it's not the same kind you or I would experience but rather his goes all the way down to the cellular level, his body is tired not only from doing daily physical activity but also natural activity such as maintaining body temp and breathing.  

Last night was Gavin's first time in his special needs gym class.  I was pretty disappointed as I was thinking is was going to be more structured with activities but it really was just an open gym with lots of fun equipment -- great for Madison but Gavin wasn't able to do anything.  I think we will try it again and maybe go to the class that is earlier in the day.  

We have no plans for any upcoming appointments.  I'm sure Gavin will need blood in the next week but we are really hoping to stay out the hospital for at least another week or so.  I'm going to be doing some begging for a longer course of antibiotics to try to keep us home while our main doc in away.  We'll see.  

Thanks for continuing to think of our family!

10 comments:

grey like snuffie said...

Good to hear an update, I've been wondering and thinking about your little man. Praying as He leads.

Renee Little said...

Dearest Karen,

I fell upon your blog through google reader's reccomendations and I have fallen in love with Gavin. Your strength and courage has encouraged me beyond words. I am praying for healing and for your continued strength.

Renee Little Tracy, Ca

Heather said...

We not only think of you ... you live in our hearts ... always.Strength and peace from California.

Anonymous said...

Thanks for the update. I am thinking of and praying for you all every day. When my mom needed blood transfusions (GI bleed) she would get very exhausted. They said the oxygen doesn't reach the organs as well when her count is low. I know just needing blood is hard on a family, and you all deal so well with so much. I'll continue to pray for continued time at home, and if you get transfused, that it is a quick trip, then back home! God Bless you all.

Anonymous said...

I've been checking in on you everyday, figuring no news is good news. Glad you're still home. Continually thinking of you and praying for continued strength for you all.
~Marilyn M

Heather Nicole said...

Sorry to hear that you were disapointed in the gym class, I know you were really looking forward to it.

Anonymous said...

Why don't you let the poor kid rest instead of dragging him to the gym? Did you ever think maybe you're making his condition worse?

Jenkins said...

Praying for your little guy. He seems so tough and patient. As do you.
And good try with the gym, sorry it was not so great. Hopefully he just enjoyed the outing. Despite all of his medical needs, he is a toddler that needs some entertainment and excitement.

grey like snuffie said...

Thinking about you all this morning. Hoping for you, praying as He leads.

Cindy Heintz said...

Gavin...have been thinking about you and keeping you in my Prayers.. ALWAYS.
Stay strong Little Man :)
Love to ALL