This week has gone by so fast, which I guess is a good thing. Gavin is holding his own, certainly getting tired, but still stable. He is still on all three IV antibiotics/antifungal, which seems to be keeping infection at bay. He still is running occasional temps but nothing that has us to worried. Things that do have us concerned are his low heart rate. he has been alarming every time he falls asleep with heart rates down in the 50's and below. This can be caused by several things, one of which is the IV amphoteracin and the other is exhaustion. When I say exhaustion, it's not the same kind you or I would experience but rather his goes all the way down to the cellular level, his body is tired not only from doing daily physical activity but also natural activity such as maintaining body temp and breathing.
Last night was Gavin's first time in his special needs gym class. I was pretty disappointed as I was thinking is was going to be more structured with activities but it really was just an open gym with lots of fun equipment -- great for Madison but Gavin wasn't able to do anything. I think we will try it again and maybe go to the class that is earlier in the day.
We have no plans for any upcoming appointments. I'm sure Gavin will need blood in the next week but we are really hoping to stay out the hospital for at least another week or so. I'm going to be doing some begging for a longer course of antibiotics to try to keep us home while our main doc in away. We'll see.
Thanks for continuing to think of our family!