Wednesday, January 21, 2009

Two Weeks...

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I can't believe we have been home for two weeks.  It's funny how Adam and I have the ability to just forget -- forget all that is going on.  Even though Gavin is on tons of IVmeds and infusions, those things are routine to us and don't really interrupt our day.  When I think of all the things we have done and accomplished over the past few weeks, it feels like we have been home forever!

Gavin is doing ok.  Not great but that is to be expected.  I was really hoping to get him some blood this week but with his doc gone it seems like everything is a bit more difficult to get things done.  We were also hoping this week to have Gavin's small bowel follow through done, but it looks like that might not happen either.

I got a call yesterday saying that Gavin's blood cultures are positive for a bug that he not currently being treated for.  He is not very symptomatic so I think they might just "rearrange" some of the meds to get him better coverage.  His output out of his drainage bags is crazy high and he is looking a bit jaundice again so it looks like he may become more symptomatic soon, but we'll just have to see how Gavin chooses to respond -- he tends to make his own plans.

Remember that no news is very good news!  Thanks, as always, for praying for our family.

8 comments:

Heather Nicole said...

Gavin always does have his own plans doesnt he! I am so thankful that you have been home for two weeks; that is so wonderful :) Love you, Heather

Jodi R said...

We are glad to hear that Gavin has been doing OK:) As usual, he is smiling:))) Karen I can't wait for your photography to start!!!
Love and prayers to your family
Jodi

grey like snuffie said...

What a sweet smile...

Lisa and Michael said...

I'm so happy to hear you've been home for TWO WEEKS! I was starting to get worried not seeing anything on Gavin's blog for awhile, but I'll remember that no news is good news! Gavin, your smile is so beautiful. We admire your courage and strength! Love and Prayers, Lisa and Michael Walk

Reagan Leigh said...

No news is definitely good news. Continued prayers for no news.

Shari said...

I also thought 'no news is good news'. I am so happy he's been home for this long while. And you know what, you just keep taking those babies of yours out and having as much fun as you can with them. They will remember it for a lifetime.

Heather said...

Two weeks,a beautiful,full, two weeks.How often do we or have we taken a mere 14 days for granted?Keep them coming.Prayers to you always.

GinaMarie said...

I hope you are able to get the meds to help that new bug. Glad he is still home and holding on well for the most part tho.
Blessings,
Gina Marie
www.caringbridge.org/visit/noahhaugh