Can I just say how amazing you all are. Do you even realize how many cards you all sent our little girl? I've lost count as they have been coming by the stacks! This means so much to Adam and I. You all are not only apart of Gavin's life but you really hold our entire family up and help support us in so many ways. Madison is going to have a wonderful day tomorrow -- and I'm sure another load of fan mail awaits our little princess!
The great news in that we got the final approval for the Omegaven today and it has been ordered from the Pharmacy in Germany. How is it being paid for? Well Mr. Dupont said that if our insurance will not cover the expense than the hospital will be billed. I'm not sure what that means but all I know is that it was ordered and we should be coming in for an admission soon to begin the beautiful infusion of white gold! (I learned that term from some other fish loving families across the USA)
The not so good news is that I'm sitting here in the ER with Gavin. Go figure. Gavin's central line clotted off this afternoon after one of his med infusions. I packed up both the kids and took the hour plus drive to the hospital to have is TPA'd (blood thinner/clot buster). The line was "ballooning" pretty bad but the TPA seemed to do the trick. After we got home a few hours later I pulled the TPA back and flushed and ... *POP*, the line broke where it had been ballooning earlier this evening. So after a whole ten minutes home Gavin and I headed back to the ER where we will now sit until the early am hours.
Things could be so much worse and I am so grateful that Gavin is stable this very hour.
Thank you God!