Baby steps -- that's what I keep telling myself. Gavin is doing well and making progress. It's interesting how at one moment an attending can come in and Gavin looks so bad and worries them, and then the next hour another doc will come in and Gavin is laying there trying to change the DVD in his player. I think He is messing with our heads. He is still on so many pain meds which include Dilaudid, Valum, Toradol, Nubian, Benedryl and Tylenol -- but they seem to be doing the trick. He is still spiking fevers up to 103 but we are thinking at this point that this may be due to his hyperinflammitory issues.
I was able to sleep over at the Ronald McDonald House last night while Adam spent the night at the hospital. Everyone keeps asking if I as able to sleep -- obviously they don't know just how tired I was. As soon as my head hit the pillow it seemed like it was 5am. I showered and rushed back to the hospital feeling a little more "with it".
Concerns still involve the edema on his side and also his hypertension, which may be just due to pain. We are really hoping to move up to the regular floor within the next few days.