Monday, February 2, 2009

It's Coming....

It's coming -- Omegaven that is! I am so excited as out Doc came in this morning and said that it looks like we should be able to get that beautiful fish fat soon. This will be life changing for Gavin as we will actually be able to feed him the calories he needs and give him the ability to grow. For those of you who are new to our journey or just forgot -- Gavin is on TPN, which is nutrition fed via an IV in his chest. The TPN is made up of several things like sugar, salt, protein and fat. The typical fat given in called intralipid, which causes liver failure for many children. Gavin's liver is not in great shape but he is not in liver failure, however he has an intolerance to the intalipid due to his hyperinflammitory issues and the MAS. The Omegaven is made up of Omega 3 fatty acids, which has amazing healing properties and is a natural anti-inflammatory agent. We are so excited -- I'll be even more excited when I see that first bottle infusing!

Gavin is doing a little better thins morning. His one bug was identified and he will be switched again to a more effective antibiotic. We are still concerned for the fungus. I think the plan is to wait and see if we still get positive cultures and then determine if the line needs to be pulled -- hopefully not! Fevers are gone but we still have not seen our typical Gavin yet, we'll see how the day goes!

For a better explanation of some of the "Big Words" I just used, click on the links to your right!

18 comments:

grey like snuffie said...

You're so funny with the Big Words...it is amazing the lingo you learn as it becomes part of your being. I kind of got it but really God gave me a sense of your excitement in my spirit without complete understanding. WOO HOO! Praying!

Jodi R said...

great news for you guys, we're very happy for you! lots of love and prayers

Courey said...

YES YES YES!!!! We've been routing for you guys and hoping you'd be able to do the impossible and get the Omegaven. And you did! I'm so thrilled for you guys! Best of luck,
Courey

Heather Nicole said...

Fantastic!!! I am so happy that Gavin will be able to get the nutrition he needs without damaging his liver.

How quickly will he be able to get it?

Anonymous said...

THAT IS SO AWESOME!!!!!!!!!!!!
YAY!!!!!!!!!!!!!!!!!
YIPPEEEEE!!!!!!!!!!!!!!!
YAHOOOOO!!!!!!!!!!!!!!!!!!!
PRAYERS ANSWERED....
kate.
p.s....be sure to read Gavin's CaringBridge tonight :-)

Shari said...

Oh Karen! I am crying tears of joy for you. I have been praying for the last several months that Gavin could get this much needed medicine. Praise the Lord! I continue to pray.

Anonymous said...

Great news! We keep you in our prayers.
Debbie S. CT

Reagan Leigh said...

That is SO EXCITING!!! Definitely a long awaited answer to prayers!!! Hopefully this is a sign of many more good things to come!

Kaitlyn said...

What great news-- God is good :)

Mary Kay said...

GREAT NEWS! and your Urban Studio website is fantastic! You are one terrific lady - Adam and your kids are so lucky to have you. I know Adam is so proud of you. Love and prayers to you all.

Anonymous said...

Good news!
I tried e-mailing but it came back. Can you send me your addy? kat_nagy@yahoo.com. I attached a pic and video of the incredible "O" and other info.
Katrina

Jill said...

Karen and Adam,

This is the best news I have heard in forever! I am so excited for you all!

Wendy said...

YEAH!!! That is the best news. Congratulations. Gavin is so lucky to have parents and doctors fighting for what will be best for him! What a lucky little boy he is.

Lisa and Michael said...

OH MY GOSH you are finally getting it!!!!!!!!!!!!!! Praise the LORD!!!! We are so happy for you and for Gavi!! We hope he's feeling better again soon. So excited for you!! Love and Prayers!!- Lisa and family

Heather said...

Great news.Beyond great.About time a little break came his way.Hope with each new day he begins feeling more like his darling self.Prayers as always.

Anonymous said...

Congratulations!!! This is unbelievable news as it is up to the docs to push for it and it looks like they did it. My son is also on Omegaven and it really works. Its a dream come true. I just wanted to mention if you weren't already aware that the hospital/pharmacy needs to have a vet license or else the company won't send it since customs will send the Omegaven back to Germany. Apparently, if the box is opened they see that it says fish oil (in german of course) and assume that it has to do with fish or animals. If there is no vet license on file with the hospital customs will send it back and the company that makes it just got tired of that. It takes about 4 to 8 weeks for the license. Hopefully the hospital is on top of this so Gavin doesn't have to wait much longer. Way to go Dupont!

Lovell said...

That is great news!....an answer to prayer for sure. It is so nice to hear the excitement in your writing. Thanks again for sharing your life with us. We will continue to pray!!!!
Love ya

Angela said...

What great news!! Thank you God for making this happen! Gavin, we hope and pray that this gives your body the "boost" that is needed to make you stronger and have more energy. We also pray that your liver functions improve.