We are done. It has been another long day I would like to forget. Things need to change around here -- we'll work on that another day, right now Gavin is my main focus. Dr. Dunn, who is head of transplant and rather brilliant man initially came out and said that it looked like Gavin J tube was down to far and his bowel, due to being very soft actually had bent around the tube and was causing to irritation to the bowel wall, which could eventually perforate it -- not good. The placed another, shorted GJ tube in and injected more barium. They saw that Gavin's bowel are not moving at all -- basically they are paralyzed. All his fluid is left to sit and rot and eventually seep through the bowel wall causing his chronic infections. He did say that we are doing a good job at keeping his bowels empty. The constant draining of his tubes in combination with the suction seems to be working , which is very good. At this point, if we were not able to drain the infections fluid out it could be even more dangerous. Right now Gavin is doing Ok. We were able to suction a lot of the barium back out giving him some relief, but I'm sure it is going to be a long night.
So where do we go now. I don't know. Dr. Dunn said that ideally Gavin would be a candidate for transplant but due to his overall condition and the mitochondrial issues transplant is probably not going to be a cure for him and may make his other issues worse. We are looking into other options but we are going to wait until we know for sure what the next step is before we are going to make that public.
Thanks so much for holding our family up in prayer today.