Tuesday, February 3, 2009

The Scoop...

Well after telling you all our exciting news yesterday about the Omegaven we had a little scare last night as the FDA had called back questioning why we wanted this drug for Gavin and said they needed to do further review. Well thank God they called last night and gave the final approval! We are so thrilled. We have a few more details to work out like, how it is going to be paid for, and the protocol here at the hospital.


I'm praying everything goes smoothly. People keep reminding me that Gavin will be the first child to use Omegaven for his particular issues and to not get my hopes up -- well my hope are way up already. I just want to see him grow. I know this is not a cure for his illness but I really believe it can at least help a little bit.


As for Gavin cultures -- has had three consecutive positive cultures of the yeast so we need to wait another day and see if we get another negative. If so then we should be able to go home soon! He is still not himself and his liver numbers and way up since bringing him in -- we'll see.

Thanks so much for your prayers.

7 comments:

Anonymous said...

No More Drama. Just give the dag gone Omegavan already. Jeez!!! I, too, believe it will help. I know very little about the *drug*, but I have faith that help is on the way for Gavin....
Hope *business* is going well! I love the website and plugged it on Gavin's CaringBridge yesterday. You did a great job designing it and I love the picture of you! :-)
xo
kate.

britta said...

Congrats on the FDA'a approval...they can be a hassle for stuff that hasn't been done before!

grey like snuffie said...

praying

Sarah Endy said...

Praying for everything to work out with the Omegavan. Praying for a miracle that it helps Gavin! Yes Lord!

Nicole, Drew, Jack, Megan, Sophie, and Lucy too said...

All we have is hope! So glad to hear that you received the necessary approval. Hope and keep on hoping! You are in our prayers!
All the Marletts

GinaMarie said...

Oh I HOPE and PRAY you get the Omegavan SOON and that it REALLY does a GOOD work on Gavin!! He deserves it!! Wow to think he will be the FIRST. I hope you are all home soon and he is feeling BETTER SOON!! Back to the goreous smiling, handsome guy. I love your photo blog! Great pictures. I love doing photography also.
Blessings,
Gina Marie

Becky said...

Hope all goes well with the Omegavan and it comes soon! We're praying for Gavin as he awaits it:)