Wednesday, February 18, 2009

Wednesday Evening Update...

What a day -- a very long boring day, which is a good thing. This big issue of the day is Gavin's edema. He woke up this morning with both his eyes swollen shut with fluid. He is looking a little better this evening after some albumin and lasix but his eyes are still very squinty.

We are going to attempt to give him a custom mix TPN solution and see how his electrolytes do. besides that fact that he is still not making enough urine his numbers are looking better. Unfortunately the temp femoral line is not "central" enough to run his usual D22 mixture so he will have to get by with D12.

He is still pretty miserable. We gave him some morphine last night which gave him some relief for a few hours. We have been sticking with Toradal today but we have some morphine on hand for this evening in case he needs it. I'm hoping he will do fine without the additional meds.

The last issue we are watching is his downward trending blood counts, I would not be surprised if he needed some more blood products before the upcoming surgery, which we still don't have a definite date or time.


You all are amazing and the love and support we are receiving through this site is almost overwhelming. Thank you all so much!

10 comments:

Jodi R said...

Karen, you have one amazing family! I think about you every day, continued love and prayers being sent your way. xoxo

~ Lisa @ AbidingThere~ said...

Thank you for keeping us updated. The prayers are continuing. I posted about Gavin and asked my (few) readers to pray, too :)

Leigh said...

Saw you from MckMama! Praying for your sweet boy and for you as parents!

Lindsey said...

Oh Karen, so much going on and so many major decisions in such a short time. We will certainly be praying for wisdom, strength, peace, and healing for your sweet Gavin. Thanks for the updates.

Lois said...

May the Lord's strength carry you through. I am praying for all of you. Go Bless

Cathy Davis said...

God love you! You are adorable Gavin!! Your big sister is mighty precious too.

I sure wish I could just give you some squeezy hugs!

Heather said...

Came over from travis' blog. Praying for you all!

Sarah said...

Here from Travis's blog. Praying for Gavin and your family!

Jessica said...

Over from Travis's site. I am praying for you! I have no idea what it is like to have a sick child but I pray that God will encourage you and strengthen you and will give you wisdom to make all the decisions that are coming at you! I pray that God will bless you in an amazing way through this journey.

Jade said...

Hope you're able to look into your little mans eyes this morning. :-D

You say you're grateful for the love and support this site has shown you, well you know what, as a social worker, and someone who works with children who have disabilities, I have so so grateful that there are loving, caring, dedicated families out there like yours, fighting together. Its beautiful to me.

Lots of Prayers for you and your family.