We are home. Although I'm very happy to be here and missed Adam and Madison so much, things are still very stressful. Gavin is not making very much progress. He is so swollen and has not been able to handle the TPN infusion and becomes very fluid overloaded. The issue is with his Albumin a protein found in blood that helps fluid stay in the vessels and not leak out into the tissues. For some reason Gavin is not making Albumin and the Albumin transfusions he has gotten do not last long. There is a chance we will have to take him back into the hospital in the next 24 hours to try to get his fluid levels back in balance.
He did wake up for a bit this morning while we were at the YMCA at Madison's gym class. He wakes up, but is just not really all there. The MRI yesterday showed some brain atrophy, which is so be expected considering his condition and doesn't really explain his current state. If things don't improve this week we will meet with the neurologist.
These photos from the week before his surgery and are so sweet -- and they give me hope that we will soon see that little boy again!