Friday, March 27, 2009

Home...

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We are home.  Although I'm very happy to be here and missed Adam and Madison so much, things are still very stressful.  Gavin is not making very much progress.  He is so swollen and has not been able to handle the TPN infusion and becomes very fluid overloaded.  The issue is with his Albumin a protein found in blood that helps fluid stay in the vessels and not leak out into the tissues.  For some reason Gavin is not making Albumin and the Albumin transfusions he has gotten do not last long.  There is a chance we will have to take him back into the hospital in the next 24 hours to try to get his fluid levels back in balance.  

He did wake up for a bit this morning while we were at the YMCA at Madison's gym class.  He wakes up, but is just not really all there.  The MRI yesterday showed some brain atrophy, which is so be expected considering his condition and doesn't really explain his current state.  If things don't improve this week we will meet with the neurologist.  

These photos from the week before his surgery and are so sweet -- and they give me hope that we will soon see that little boy again!

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11 comments:

Kelsey A. Lowrance said...

Praying for you ALL!!!!!

twinkle said...

I like that they couldn't find anything to cause him to be so unresponsive right now.
I believe it would take me a while to get over all that he has been through. The PAIN. The MORPHINE. The WITHDRAWALS.
And our bodies heal during our rest periods. Yea!
Will faith be found? Christ asked that about the latter days.
I say, "YES!"
We can believe God for a miracle until HE shows us different for Gavin's purpose in this life.
Hang in there.
Keep singing to him. I don't know why but I think it is very important.
Madison...you are a darling princess. Take good care of Gavin. And mommy & daddy.
*t*w*i*n*k*l*e*

Tiffani said...

What sweet sweet pictures!


I pray that your time home will restore some strength to both you and Gavin.

Lorra said...

Praying that God will heal Gavin's little body, and shower his family with many blessings.

Anonymous said...

Poor fella. Home for such a short time, taken to the YMCA for Madison's gym class, and now possibly back in the hospital again. No quiet time for his healing.

God bless you Gavin.

ISO (In search of) said...

Glad you are home. I know the vitals aren't optimal right now but I believe there is a peace at home that just can't be found when you are among all the hospital commotion. I pray you all get a goods night rest and that things improve greatly soon.

Virtual hugs to you all. So thankful you got to spend time with Madison doing things she loves.

Anonymous said...

Praying for you all...and in my prayers, this came to my heart and mind. It is the Prayer of Saint Patrick, often called "St. Patrick's Breastplate".

"I ARISE TODAY
Through God's strength to PILOT me:
God's might to UPHOLD me,
God's wisdom to GUIDE me,
God's eye to LOOK BEFORE me,
God's ear to HEAR me,
God's word to SPEAK for me,
God's hand to GUARD me,
God's way to LIE BEFORE me,
God's shield to PROTECT me,
God's host to SAVE me,
From temptations of vices,
From everyone who shall wish me ill,
Afar and anear,
Alone and in multitude."

Dear Lord, be this family's shield and breastplate. Surround them with your tender mercies.

Sofia, still praying for you all in MI

Beth said...

A beautiful picture, and keep your chins up.
You all have had a rough road, you do a great job of keeping the balance of dealing with a very sick Gavi and also giving Madi what she needs as well.
Thank you for the updates, praying for you all.
beth in colorado

ginger said...

Came by to see how you guys are today. Gavin is constantly on my heart.
I was wondering if you have a button for people to put on their blogs or if you were interested in that sort of thing? I made one out of a miniature version of your header if you are interested. It is on my blog. If not, I will take it off. I would contact you by email, but I didn't see one listed.
Hope you have a great weekend!

Anonymous said...

Praying for you this morning and led to Psalm 77. This may help y'all.

About Me said...

Oh my, those pictures of him melt my heart! My little boy has that same hair color, he reminds me of my Alex. Heartbreaking! Praying for you all Karen.