Yesterday I was telling Adam about how I wish somehow in my mind I could just resolve that our life will never change, we will always be in and out of the hospital and we will never find quiet. If I could keep in this mindset it would make my life a lot easier -- I wouldn't be so stressed every time a possible admission is in the air. Truth is -- I'm not in that mind set. I still dream of living a normal life, I still have glimpses of my little boy made whole, and no matter how many times we are admitted to the hospital the words "bring him in" still sends chills down my spine.
Things with Gavin are crazy right now -- I feel like his little body is unraveling. Gavin has been running fevers for the past 48 hours, cultures were drawn and so we wait. The biggest issue right now is his blood sugar. The past few nights he has been running over 500 when on his TPN. You read that right -- five freakin' hundred. If things do not calm down we will have to have an endocrinology/diabetes work up later this week.
He still is struggling with his energy levels. Sometimes he does ok and is pretty alert but other times I have to do that look real close is he still breathing maneuver. He is getting better and does seem to be making progress everyday. He still is not peeing, which in mind mind is one of the biggest issues I would like to see resolved.
For this week please pray that we can get Gavin's blood sugars under control and try to figure out how he can go from one extreme (hypoglycemia) to the other.
This boy likes to keep things busy!