We hate them.
I know it's a strong word but I strongly feel a dislike towards them. It is a proven fact that children with Mitochondrial Disorders often times respond in a very weird ways to narcotics -- we now know that Gavin is one of those children. We placed Gavin on a Clonidine patch yesterday to help with the withdraw symptoms of the dilaudid -- it has done wonders! Last night Gavin was actually able to be semi-pain free and interact with me and others. It was a gift from God -- and to top things off he had some crazy silly reactions that gave me a few smiles.
Gavin spiked another fever last night -- go figure. The original plan was to place a broviac line today but we were not able to due to the spike and now the positive cultures. So this morning we placed another femoral line and will have to wait and try to get his temps down and negative cultures before we can place the line in his chest.
So -- things look like they are improving. Thank you God for giving Gavin the break he needs!