Friday, March 6, 2009

Narcotics...

We hate them.

I know it's a strong word but I strongly feel a dislike towards them. It is a proven fact that children with Mitochondrial Disorders often times respond in a very weird ways to narcotics -- we now know that Gavin is one of those children. We placed Gavin on a Clonidine patch yesterday to help with the withdraw symptoms of the dilaudid -- it has done wonders! Last night Gavin was actually able to be semi-pain free and interact with me and others. It was a gift from God -- and to top things off he had some crazy silly reactions that gave me a few smiles.

Gavin spiked another fever last night -- go figure. The original plan was to place a broviac line today but we were not able to due to the spike and now the positive cultures. So this morning we placed another femoral line and will have to wait and try to get his temps down and negative cultures before we can place the line in his chest.

So -- things look like they are improving. Thank you God for giving Gavin the break he needs!

12 comments:

Anonymous said...

Karen,
I am so sorry for not leaving comments for a while...I'm quite sure that is the LAST thing on your mind, but I feel bad. I have been following every single day - checking this blog several times a day for updates - and praying constantly for Gavin. I have cried many tears for the torturous moments you and Gavin have experienced. I'm so happy that today seems like a good day and that Gavin's pain seems to have been reduced. Yay!! I'm waiting to hear back from your friend about meals...I want to be on that list! It's probably a mile long. Or, maybe I haven't heard from her because you found out about my cooking skills. ;-)
Thinking of you all the time...
xoxo
kate.

Heather said...

Yes ... improvement,just what we like to hear!Praying that today holds more of the same.And that Clonidine,interesting stuff.It was originally marketed as a blood pressure medication but has obvious multi uses,in fact or 5 1/2 year old takes it for severe ADHD.Go figure.Prayers as always and kisses to the little love.

Robyn said...
This comment has been removed by the author.
Robyn said...

Wow, it's these things that get us through, isn't it? I could tell yesterday you were at the end of your rope...but you tied a knot and hung on! And what a blessing that he was semi pain-free! YAY God!

mrsrubly said...

i am happy to read that there's some positives mixed in with the negatives! go Gavin Go! i pray that those stinkin nasty rotten fevers don't come back so you can get the procedures done. and that Bacteria? well it can go away too. still praying for ya fella

~ Lisa @ AbidingThere~ said...

I am SO GLAD for a little relief!! I hope he continues to improve and has turned a corner.

Heather Nicole said...

So happy to hear Gavin is feeling some relief :) love, Heather

Betsy said...

So glad to hear the the new med is helping. I have been praying for him throughout the day!

Anonymous said...

Praise the Lord!! Continuing to pray for Gavin and your family!
Jennifer

Terri said...

So glad to hear that Gavin is responding positively to the narcotics being withdrawn!! He is such an amazing little guy! What a fighter! I'm still praying for you all.

Robin said...

Hi, I've been following your blog since Gavin's surgery and my heart has been heavy for you all. I was praying for you guys as I fell asleep last night... struggling to imagine what you must feel like as parents to watch your baby suffer so much. Will continue to pray... praise God for the good news!

Anonymous said...

Hi Karen, I too follow Gavin's progress every day but don't leave messages letting you know I'm praying... but I am praying for Gavin every day. Tonight I'm thanking God for the miracle of less pain! May God bless you all this week, and show Himself in many more small miracles.

Nilia Palhinha