Thursday, March 26, 2009

Open and Shut...

Open and shut -- that's what happened over night. Last night around 7pm after his dose of Morphine and Benadryl Gavin woke up. He was scheduled for an unsedated MRI at 8, which was not able to be done because he was literally completely awake. A few hours prior to waking up Gavin was looking so bad and the docs were fearing that he may be overdosing on Morphine, so the morphine was stopped after his 7pm dose. This theory has gone to the dogs as he actually woke up after his Morphine was given. None the less a tox-screen was done to check the levels but wil not be back for several days. Oh my gosh -- my baby is getting drug screens at the age of 2.

The bad news -- Gavin is in his trance like state again. This morning I took him out for a walk and after about 10 minutes he went limp again. The other very concerning thing is that after 15 hours of no Morphine in his body he is showing no signs of withdraw, where prior he was going into severe withdraw after 5 hours or so -- this points to a possible neuro issue. We are hoping not. The original theory was his mito issues causing the extreme fatigue -- this is my bet, and hope. He will be going down for a sedated MRI at 1 and please pray the scan is clear.

Gavin received lasix yesterday but is still very swollen this morning and not making much urine. And just in case you were wondering -- he is still not peeing on his own. We also restarted the Omegaven, which has been going great. He seems to be putting on some weight thanks to the extra calories the friendly fish are providing. There is a possibility of discharge later this evening if the MRI is clear -- my hopes are not high, but it has been mentioned.

This morning I woke up with a new sense of strength -- or I should say I feel like I'm crawling this morning rather than flat on my face -- improvement none the less. Thanks so much for the support you all are providing our family.

12 comments:

Anonymous said...

You are praising the Lord through the storm! Through the pain and suffering and not-understanding and frustration, you are still praising Him! It's an absolutel miracle and He's blessing you for it. Thank you God for the glimpse of the old Gavin and still praying and believing for his complete restoration!!
-Lauren in TX

~ Lisa @ AbidingThere~ said...

Thank you for the update. Will be praying for the MRI results to be great. And thanking God that his plan and purpose for Gavin will be fulfilled. xo

twinkle said...

Karen, eat.
Karen, drink fluids.
Karen, rest.
Karen, sing over Gavin. "Jesus Loves Me". "He's Got The Whole World In His Hands". "Come, Ye Sinners, Poor and Needy".
Karen, kiss Gavin softly on the head for me and tell him I am praying for him to get better.

Trusting Jesus through all of this unknown. May the Holy Spirit overwhelm you all as He ministers.

TammieFay said...

Rejoicing with you Karen! So good to hear a little good news....continuing to pray for your precious family and Gavin.

"Lord, You are good and what You do is good...teach us Your decrees." Psalm 119:68

grey like snuffie said...

When I think what that little man's body has been through...wow.
God You created little Gavin...help him in this battle. Thank You for reviving Karen...Father I can not imagine but You know so intimately what each of them need. God Your eyes are upon them, strengthen them, hug Madison and help them accomplish what needs to be done. Grant the doctors Your wisdom, answers they may not begin to think on their own. Abba Father, embrace this family with Your love. In Jesus name, AMEN

Taria M. said...

I was thinking about you all this morning, and prayed for you. Your strength is amazing... I know that when we place our full trust in God, He will lift us up and carry us through. I'll be praying for Gavin's MRI, and for continued strength for his wonderful parents.

Tiffani said...

"still you hear me when I'm calling..Lord, you catch me when I'm falling..You've showed me who I am...I am Yours!"

One of my fave Casting Crowns songs that I sang during a time when my daughter (in utero) was thought to have major issues...YOU ARE HIS, Karen and so is Gavin! :)

Will be praying on this day and so glad for a little bit of strength in your knees ;)...one foot in front of the other.

Sarah Endy said...

Praying for a clear MRI, and for Gavin to be "himself". Karen praying for continued strength, peace, and rest for you all! We love you!

twinkle said...

Praying...

Faith said...

I am praying for you guys! I hope you get good MRI results and he will be back to his old self soon!!
~Raeanne

embaby81 said...

Praying for you - hoping that the MRI is all clear.

Em
from Australia

Karen said...

Thinking of all four of you. Hang on Karen.