Open and shut -- that's what happened over night. Last night around 7pm after his dose of Morphine and Benadryl Gavin woke up. He was scheduled for an unsedated MRI at 8, which was not able to be done because he was literally completely awake. A few hours prior to waking up Gavin was looking so bad and the docs were fearing that he may be overdosing on Morphine, so the morphine was stopped after his 7pm dose. This theory has gone to the dogs as he actually woke up after his Morphine was given. None the less a tox-screen was done to check the levels but wil not be back for several days. Oh my gosh -- my baby is getting drug screens at the age of 2.
The bad news -- Gavin is in his trance like state again. This morning I took him out for a walk and after about 10 minutes he went limp again. The other very concerning thing is that after 15 hours of no Morphine in his body he is showing no signs of withdraw, where prior he was going into severe withdraw after 5 hours or so -- this points to a possible neuro issue. We are hoping not. The original theory was his mito issues causing the extreme fatigue -- this is my bet, and hope. He will be going down for a sedated MRI at 1 and please pray the scan is clear.
Gavin received lasix yesterday but is still very swollen this morning and not making much urine. And just in case you were wondering -- he is still not peeing on his own. We also restarted the Omegaven, which has been going great. He seems to be putting on some weight thanks to the extra calories the friendly fish are providing. There is a possibility of discharge later this evening if the MRI is clear -- my hopes are not high, but it has been mentioned.
This morning I woke up with a new sense of strength -- or I should say I feel like I'm crawling this morning rather than flat on my face -- improvement none the less. Thanks so much for the support you all are providing our family.