Oh what a day -- a very long day I do not want to repeat. This afternoon Gavin's pain became very severe. No amount of narcotics was taking the edge off so the docs ordered a stat CT scan of his belly. The answer was clear -- Gavin needs to pee. They said his bladder was so enlarged that it was filled a good portion of his abdomen. They replaced the Foley catheter and he has found some relief. So now we will let the Foley in place for another few days and then try again.
Now for a question for all of my Ostomy mothers: What do you find to be the best type of bag? The bag he has on now is way too small for his amount of output, but the larger sizes are too big to fit under his G-tube stoma. Anything you wish you had known when your child first got their ostomy? Gavin's is a jejunostomy, so it's a different than the typical ostomy -- but I think it's the same concept.