Where to begin? It been a rough past few days. Gavin is just a mess. There are so many issues playing into the overall problems that it is just so overwhelming trying to sort through it all. The biggest task at hand is to try and help Gavin get off these narcotics. He still is in a lot of pain but he is not handling the narcotics well and they seem to be causing more harm than good. We will start Gavin on a patch to help lessen the withdraw symptoms. Despite that fact that he have not yet started to wean him down on his meds he is already is pretty serious withdraw due to his tolerance build up. He wakes up shaking and in a panic and is sweating profusely. It's very sad to watch and add in the very real pain he is still experiencing and it's just almost to much to watch.
We have had a negative culture from the infected femoral line so we plan to head to the OR tomorrow to have him broviac placed back in. I don't' think anyone has any long term plans, we are just taking one day at a time.
I'm just about done with this place. I've just reached my limit. It's one thing to be stuck here in general but another to be stuck here and standing over your hurting child 24/7, not to mention trying your hardest to give Madison to attention and affection she needs and deserves.
Please pray that this patch works to lessens to horrible withdraw symptoms Gavin is having and also pray that we will find his pain to be less once we wean him down off the narcotics.