Wednesday, March 18, 2009

Wednesday Morning...

The discharge word is being thrown around the air today -- we'll see if our team can work their magic. We have, what feels like, a bajillion loose ends to tie, so I'm not packing just yet. Today is a very scary day -- all antibiotics and antifungals have been stopped. Oh my goodness. Gavin's counts dropped again overnight so we are waiting on the blood bank to get his blood ready and hopefully we will start the transfusion in the next few hours.

Please pray for all these little nagging issues we still are trying to figure out, including where we can get our little junkies narcotics, ostomy supplies, coordinating things with our TPN pharmacy, catheter supplies, figuring out how we are getting the Omegaven and where its tubing and stuff will come from, how we are going to get Gavin to bend in his car seat for the hour and a half drive home and lastly our transition into the real world!

8 comments:

~ Lisa @ AbidingThere~ said...

Lots of prayers for you today! Can't wait to hear how the transition goes! Have a GREAT day :)

3saints said...

Oh Karen
I'll be thinking of you guys today, I know it's so much but I bet Gavin will be so amazed to be home!!
Hugs to you!!
Kate

Tiffani said...

consider it done, my friend. hoping for GREAT things today!!

PsychMamma said...

Thinking of you and wishing you all the best. They do have carseats that allow for kids to recline/lay down. You usually have to get them through a medical supply company, but maybe the hospital or a social worker there could hook you up with one to rent for the ride home??

twinkle said...

I like that word...discharge! Say it like the Cavalry! DISCHARGE!!
Let's just breathe deeply and EXPECT some met needs for all those you mentioned.
God, You ARE, You know.
Perform the impossible and make their paths straight. We are so weary of waiting and we will, if You ask. BUT, we want bluebirds singing and rainbows shining...and promises kept. We want a little bit of NORMAL for sweet Gavin and his dear family. Just remember him, God, and pour out a miracle. In Jesus Name. Amen.
And Karen, here's a hug and a quick back pat/rub. And a tear. Can't wait for better days, but remember these tough times in your heart. God is at work. He will never leave you or forsake you. He has carried you through this far, and He will continue.

Reagan Leigh said...

Awesome news!!! I hope it happens sooner rather than later! I know you hate to get your hopes up, but boy do you deserve to go home!!! Praying for a smooth transition!

Amy Beth @ Ministry So Fabulous! said...

I've had you on my heart a lot lately, Karen. I don't know how you do it.

I posted a little link on my "Oh So Right Now" for prayers for little Gavin. Hope that's okay.

Kelly S. said...

PTL!!
I'm still praying for Gavin. Hope you get to go home soon.