Tuesday, April 21, 2009

Lots of Things...

shades

Howdy everyone!  Do you know why there have been no posts?  We are livin' life!  Gavin is feeling good and we are living every moment to the fullest.  This weekend we were privileged to be nominated to join many other families with seriously ill children and hit the high seas.  We had a great day out on the water aboard the Spirit of Philadelphia.  The kids had a great time and Mommy and Daddy did as well.  The best part was that our good friends from DuPont were on the cruise as well!  Thanks to the Kelly Ann Dolan Memorial Fund for giving our family a great day of relaxation!

boarding

Madison has been busy with soccer class as well as her preschool gym time at the YMCA.  Gavin has also been hanging out with Mommy next to the elliptical machine entertaining all the ladies in the gym!  With the weather starting to warm up we are starting to make our way around all the local parks and playgrounds.


mommy

Today we spent the morning at DuPont.  First came urology were we talked about Gavin's lack of peeing. We are just going to continue with the cathing and next month we will be getting some urodynamic studies to look for contractions in Gavi's bladder as well as a renal ultrasound due to a suspicious right kidney, which looked a bit large on the last imaging.  We then headed to the wheelchair clinic where we found out that Gavin has just about grown out his wheelchair.  Most likely within the next year we will be moving Gavin up into a "big boy" chair with maybe the possibility of a power chair

**insert mommy's cringe!


kitty

Thanks for continuing to think and pray for our family.  God has truly done an awesome work in Gavin over the past few weeks!  Dare I mention that it has been almost two months without infection?  Simply amazing.


Alex

27 comments:

Faith said...

Karen, he looks fabulous and I am so glad things are going better! I am praying that things continue to be good and stay that way!!
Raeanne

Anonymous said...

We are so happy for you guys! We are praying for you all still!
Saballos family- CT

ISO (In search of) said...

Oh these pictures bring a smile to my face (and my kids' too). We've been praying for you every night. So happy you are enjoying life.

Praying for many many many more blessings to you.

Shari said...

He looks wonderful Karen! He looks like the real Gavin is coming back! I am so glad you are living life outside of hospital walls. What a huge answer to prayer and a big blessing for YOU! Yay! I continue to pray for your family.

Tiffani said...

oh my goodness..I couldn't be anymore thrilled to read this post...

I am always watching out for posts and when I saw this one I just praised the Lord...I know you guys are all so relieved and enjoying these "quiet" moments...

SOOOO happy for y'all!

Me and My Boys said...

Yeah!!!! Maybe we can meet at a park soon!!! Jessica

Anonymous said...

Thats so AWESOME!!! I'm so happy for you guys!! MAdi looked terrified boarding the ship. I bet she was thrilled to be with her boyfriend..so cute.
I love you..I'm so happy things are on the up and up..
Love
Your sis

grey like snuffie said...

Happy dance happening here!

twinkle said...

So glad y'all are livin' life! Those smiles are priceless and say it all!

Anonymous said...

Thankful to read the great report! So glad you get to enjoy the Y and the soon to be sunny days. Let's do a playground together sometime- Evan is bored w/ me! Has the countdown 'til Disney begun yet? We will be praying as always. Lots of Love, the Seymours

~ Lisa @ AbidingThere~ said...

Wow! This is awesome news!! I am SO GLAD you guys are living life!!!

xo

About Me said...

I was just thinking "no news is good news!" So glad that was the case. The photo of you and Gavin is precious, it's so nice to see him happy and healthy, what a beautiful little man you have. You are an amazing Mommy :)! Emily

Reagan Leigh said...

What awesome news! I am so happy for you all. Gavin looks just wonderful in his new pics! And I just love the new blog pic/title!

Anonymous said...

PRAISE THE LORD. This is such awesome news. God is good. . . all the time!!!
Continuing to pray for Lil' Gavin and the whole family.
-Arkansas.

Cindy Heintz said...

Awesome News!!!!! The "Big Smiles" are so wonderful to see.Being Home, Living Life, that's the best!!:)
Sending positive thoughts and lots of Prayers your way Always. Much Love :)

Angela said...

So very happy to hear good news!! The pictures are precious. Always prayin and thinking about you guys.

all4boys said...

God is so good~He has heard our pleas for sweet Gavin, and He is doing His thing in his life! Praise God!

I love the pic of you kissing Gavin and his smile~how amazing. I will continue to hold your family in my prayer...keep on not posting!!!! Although I've missed reading, I'd much prefer y'all live your life.

Love, in Christ!

Tina said...

I'm so glad! I always worry a little when there are no posts, but I was trying to keep positive and I was so glad to see this post! He looks so full of life and happy. You all do.

Beth said...

SO happy to see some progress in the right direction. Things have been so scary for you in the past several months and this just gave me such a sigh of relief to see that things have turned for the better recently.
ENJOY!!

many prayers,
beth in Brighton, CO

kyna said...

SO SO glad to hear it! Rabu has taught me no news is good news, so go live life and just check in once in a while so we know you are doing great! We are keeping you all in our prayers. What a wonderful time of year to be free to move about! Love you!

Anonymous said...

It's so good to see those pictures! He looks wonderful - it looked like the whole family enjoyed the day! We are continuing to keep Gavin and your whole family in our prayers...

Kathy in Texas

Lisa and Michael said...

PRAISE THE LORD!!! We are rejoicing with you as you live life and spend time together as a family! What a great post!!! We will continue to pray. I bet you are all excited for Disney! have a wonderful time. God bless you all- Love the Walks

britta said...

So GREAT to read that things are going sooo good for everyone! Woo hoo to no infections! Love the new top heading and picture! Yeah Gav-man!

Love, Britta :-)

Heather said...

Looks like,dare I say,some normalcy peeking through amongst the chaos.What a beautiful thing.Love in bunches coming from California.

kate said...

I'm so happy that Gavin is doing so well!!!!! The cruise looked like a lot of fun. And infection free?!?!?!?!! That is so awesome! When is Disney? I need to know when to start packing. Can't I pretend I'm Gavin's Aide? Or how about your personal assistant? Come on...pretty please?
Love the new header...you crack me up. Puttin' the cool back in chronic....LOL!!!

Sitesx6 said...

I've been following Gavin's journey for 3 months or so, (and praying) and I'm just so very happy to see you are enjoying some MUCH NEEDED AND DESERVED family time, joy, happiness, infection free living!

Awesome. It made me smile to hear about you doing the simple things, like being able to do the elliptical (which is no simple thing now that I think of it) but you know what I mean.... :)

Enjoy this time. :)
Big hugs from Michigan!

ACC-mom said...

your family is beautiful!