It is really amazing to see how things can change in a matter of a few hours. No less than four hours before Gavin was admitted to the ICU with sepsis we were at a family dinner. Adam and I seemed to be trying to convince people how "believe it or not, Gavin is really sick" -- he looked pretty darn good. Within a matter of minutes we go from eating at the table to carrying our grey, limp and shaking child to the car heading for the ER.
Well, our little bionic boy now seems to be turning around in the same fashion. He is acting happy despite some abdominal pain due to his huge spleen, and had another good nights sleep. With that said -- We are going to Disney!
Gavin will get another round of platelets in the morning and then head off to the OR to have his central line pulled out on his groin and into his chest. After he wakes up we will start packing up and not looking back. Our transportation to the airport will arrive at 10am on Sunday and then we will make the adventure of "Gavin and his and his 10 tubes, pumps and monitors going though airport security." Even though I'm a bit anxious about all of it -- I'm totally up for an adventure!
Thanks to all who have helped us though yet another week long stay at hotel duPont. We love you all and are so glad you are apart of our lives. Enjoy the photos of our time outside this evening. Who says a little boy in a wheelchair can't ride a bike?
If you can't ride the bike -- let the bike ride you!
18 comments:
Happy Dancing going on! Will keep praying!
Yay! I am so excited for all of you! I will be looking for pictures AFTER you spend a whole week having a fun adventure! Will continue praying! Love to you!
yay!!! have fun at disney!!!
:) :) :)
Praying you guys have a wonderful, exciting, healthy time!!!
Jennifer in AL
that's amazing news, karen!!! so excited for you all!
Yay! Have fun, you deserve it! Praying for health.
so awesome you get to go to disney! have fun! we'll continue praying for you!
i can't find anywhere to email you, so i'll ask here. why is gavin in a wheelchair?
We've had a great Saturday down here in Oz...but it got a bazillion times better when we got back home and found this blog post.
Over the moon with for your guys!
Dunno what happened to the word "joy" in that last line...but you get two comments now :)
Love your spirit Karen!!! I so hope that you have an amazing experience. God Bless, Emily
Yaayyy!! I'm so glad you're heading to Disney - I hope you guys have a magical, unforgettable trip! I'll be blowing kisses toward the middle of the state (I'm on the FL coast). Have FUN :)
Amazing news!! Enjoy Disney and we can't wait to see all of the pictures when you guys return. Madison, have an amazing time at Cinderella's Castle!! We'll continue to pray for all of you (:
Hooray! Say hi to Mickey and the Princess' for us!
All the Marletts
Yay!!! Have fun!
Praise you Jesus!! We are so excited that you are going to Disney TOMORROW!! Have fun! We'll be praying that all goes well as you travel. Can't wait to see pictures!! Love you guys!
~Moses'
Looking forward to seeing the photos from Disney - 'cause I've been praying for them!
Barbara
Anna -- Gavi uses a wheelchair to help him with proper positioning. He has significant developmental delays(cannot crawl or walk and has difficulty sitting on his own) and this chair helps him be in a developmentlally approptite position and not hunched over. It also give us a way to transport his equipment as his baby stollers would tip right over!
We are not sure as to his future as far as mobility. We would pray that one day he will walk but for now we just don't know.
Good question!
I love the bike! He has such a great smile.
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