Sunday, June 7, 2009

Getting Better and Lots of Photos...


Ahhh -- I love when it's time to write this post. Gavin has turned the corner and is now on the getting better side of things. He was running a temp for most of the morning but has been fever free this afternoon. The multiple albumin and lasix infusions yesterday really helped to pull lots of extra fluid off his body and relieve some of the pain he feels from pressure in his abdomen.


Today was a very long day, as every weekend is. It's so crazy how the hospital just seems to shut down -- it's way to quiet for my liking. We got Gavin in his wheelchair for most of the day and took our one billionth tour of hotel duPont. We also switched rooms today back to good ol' room 15, which sadly to say I have raised both my children in. It's really actually crazy to think about -- We've had many holidays in this room, we have talked about death in this room and this is also the room where a glimmer of hope was given and the idea of Gavin's big surgery was first talked about. This is the room Madison hit her head on the door and required 6 staples in her noggin. This is the room we have also met many other families who we still are in touch with now. It's just so crazy to think that we have literally lived our lives in this room and what's even crazier is that I have lots of good memories here -- it's not always that bad.


They ID'd Gavin bug this morning and for all those who really want to know, it was Enterobacter -- lovely. We switched up antibiotic coverage to cover Gavin better and should be able to go home on only one IV antibiotic. Home was talked about in the next day or so -- but I'm not even getting my hopes up just yet. Last but not least for those who were wondering, Gavin has a Hickman Catheter (central line) in his chest where all blood is drawn from. The only time we have to stick him is when we check his sugar, which he doesn't mind much. Also even when Gavin's central line needs to be pulled we no longer give him an peripheral IV, he always has to have central access, so a femoral line is placed, as long as he still has those vessels open.



Cammie Heflin said...

Love seeing his precious smile! So glad things are improving!

therextras said...

Just checking on y'all this evening. Despite my familiarity with many-things-medical the list of portals kind of threw me...

Still, thank goodness for the good news, and what a blessing to be able to see both the positive and the negative of a particular place where you live.

I'm privileged to pray for your family. Barbara

Chelle Cates said...

I am so glad to see the page load and a smile pop up. I haven't had a chance to get on the laptop as Mr. Carter thinks he should be held 24/7 while we are inpt. I have been thinking about you so much and am so relieved to hear things are better. We will keep praying for a quick exit for both boys!!! Sending love from Texas
Chelle, Sean & Carter

GinaMarie said...

Im so glad Gavin is doing better and seeing him SMILE! :o) Praying you are all HOME in the next day or so also. Hurray for only ONE antibiotic!!
Gina Marie and boys

The Rowe Family said...

That little boy is such a Trooper! You too Mom! God bless,

Anonymous said...

we were eating lunch and out of the blue ava said..."gavin has a new boo boo?" then she kept eating...
A little later she piped up between bites. " I love Gavin"
That was that. SO CUTE! I went over and kissed her forehead.
Hope you are doing well.
we do love you guys and can't wait to celebrate Gavin's BIG 3!

Jill said...

This is my first time on your blog, and I had to comment because I noticed you use the same hospital as us :) My son Gavin has some chronic medical problems that bring us to duPont often for care either in patient or out patient. We were recently there to have a GJ tube placed.

I can't wait to have time to read more about your family!

Reagan Leigh said...

I'm so glad to hear things are getting better. I love the pictures! Gavin is SUCH a cutie!

Anonymous said...

Gavin has got the most beautiful smile! He truly brightens my day. Seeing a child who has been through so much smile from ear to ear such a genuine smile just melts my heart! Continuing the prayers for Gavin and your entire family.

As a side, would you be willing to mention what the various "lines" that are seen in the pictures are? If that is too personal, I totally understand. I am just so curious. I am guessing one is stomach to gravity drain, one is jejunosotomy bag..but the others?

As always praying for your little miracle with the precious smile! And your entire family!