Tuesday, June 2, 2009

A Little Update...

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Last week was pretty quiet -- just the way we like it.  On Friday I spent the day with the kids at DuPont as Gavin was in some serious need of blood.  His blood counts were at scary levels -- no wonder he was so floppy and irritable.  He seems to be doing better but he may need more blood this week to get him to an acceptable level.

Tomorrow we will head back down to the hospital for some bladder/kidney studies.  For those of you who do not know, Gavin is unable to pee on his own and requires frequent caths to empty his bladder.  I think the studies are trying to see what exactly is going on -- is this just progression of his disease or did something happen during Gavin's big surgery in February.  Everyone seems to feel that the likely hood of something happening due to the surgery is so small, and even if there is nerve damage there is no way to really tell. We'll see what the show.

Other that medical stuff, not much else is going on.  We have been spending out days at the YMCA, where both the kids will start classes next week.  Madison will be doing dance, and a cardio class and both the kids are enrolled in pee wee sports.  We'll see how Gavin does -- or rather we will see how I will do running up and down the court pushing his chair -- He's going to love it -- even if he never gets to touch the ball.  

I can't wait!

8 comments:

mrsrubly said...

aww! i hope he feels better. he is such a handsome lil fella. i am continuing to pray for ya'll. go gavin. i hope the pee wee sports goes great.

evwmom said...

The Y sounds like a lot of fun! Can't wait to see the pictures. Evan is now in the PICU since yesterday's surgery and will be for a few days his preemie lungs are working slow on the vent and the pain meds are also slowing it all down. As long as he is not in any pain, I am ok with him being on the vent. Love the pics of him, must be a great feeling to just swing back and forth

JayCee said...

Thanks for the update....was wondering. Pray that all goes well!

blairspage said...

I hope they figure out the pee thing soon! That's got to be so frustrating not knowing what's going on with that! YMCA sounds like a blast. The kids will love it!

Hugs - Tiff

Tina said...

Like many of your readers, I feel like I now know you personally through your blog. I must admit I was a little concerned when there was no update in almost a week. Glad to hear that you were taking some family time. :)

kate said...

I LOVE today's picture!! It speaks volumes about where you've been. Not that I'm upset about the lack of updates lately. *wink*

The Y sounds like so much fun! I would pay to see you pushing that Kid Kart on the court. ;-) Our Gavin got his - he LOVES it, and so do I.

Hope we can get together over the summer for a play date!

Anonymous said...

YOU ARE SUCH A GOOD MOM!!!
~Marilyn

therextras said...

Swinging is very, very good!