Last week was pretty quiet -- just the way we like it. On Friday I spent the day with the kids at DuPont as Gavin was in some serious need of blood. His blood counts were at scary levels -- no wonder he was so floppy and irritable. He seems to be doing better but he may need more blood this week to get him to an acceptable level.
Tomorrow we will head back down to the hospital for some bladder/kidney studies. For those of you who do not know, Gavin is unable to pee on his own and requires frequent caths to empty his bladder. I think the studies are trying to see what exactly is going on -- is this just progression of his disease or did something happen during Gavin's big surgery in February. Everyone seems to feel that the likely hood of something happening due to the surgery is so small, and even if there is nerve damage there is no way to really tell. We'll see what the show.
Other that medical stuff, not much else is going on. We have been spending out days at the YMCA, where both the kids will start classes next week. Madison will be doing dance, and a cardio class and both the kids are enrolled in pee wee sports. We'll see how Gavin does -- or rather we will see how I will do running up and down the court pushing his chair -- He's going to love it -- even if he never gets to touch the ball.
I can't wait!