It has been a rough day and I'm sure it doesn't help that I'm running on no sleep. Gavin slept most of the day and I spent all day waiting to hear what in the world the game plan was. Gavin's main doc was out today so we had to adapt to another doc, who is perfectly capable but it different. In all the chaos and uncertainties we deal with there is one thing that I have issues with being different -- Gavin's care. To make a long overly-emotional story short -- we figured it all out.
Gavin's hemoglobin is at an all time low and he will be getting blood very soon. His blood cultures from both lines grew out within a few hours for Gram Negative Rods -- the bad guys. He continues to spike fevers and the swelling has begun. I took lots of cute photos today but sadly forgot my USB cable -- how can I forget the USB cable?!
I had an amazing conversation with Gavin's surgeon this afternoon -- who basically reminded me to never have regrets and to trust that because we love Gavin with all our heart every decisions we make will be the right one for our family. We even shared a laugh over the possible phneumothorax a few weeks back. Strange huh? That's our life.
And might I add that my little boy will be turning three next week?
A true miracle.