Tuesday, August 4, 2009

A Little Hope...

Today we spent the entire day down at DuPont. Gavin started out with labs, which came back pretty poor. His labs show that he is still pretty neutropenic -- white count at 1 and his immunoglobulin levels at 300. His hemoglobin was 5.2. SO needless to say we spent the day tanking our little fighter up. He got a hefty dose of IVIG as well as some blood. Because his levels were so low we were not actually able to give him as much blood as he usual gets in an effort to prevent any cardiac troubles, so most likely we will receive more blood next week.

Gavin's Doctor informed me that Gavin's cultures from his PICC Line are growing out two bugs, which both we transferred from his previous line that was pulled on Friday. The one bacteria looks like it has "morphed" and is now resistant to the antibiotics Gavin is on, which means another change in medication. Besides sleeping most of the day and night, Gavin is doing well. He was running fevers last night but otherwise stable.

I think Adam and I are feeling a little better today than earlier this week. Sometimes we just need to get over the shock of the things we hear coming from our Doctors mouths. We need to process and then keep on living life. We are making several changes mostly to deal with Gavin's new issue of severe immune suppression. There is talks of starting a G-CSF injection which is used in many cancer patients to boost white cell production. We are up for anything, so we'll see what the docs decide. We are also hoping to keep Gavin's Igg levels high, which will most likely mean we will be getting weekly IVIG infusions.

Thanks as always for pushing us through this past week. We never come here looking for sympathy or pity but we always find some sort of comfort in reading all the comments, knowing how many people are standing behind our little guy.


Cindy Heintz said...

Hang in there and keep that positive attitude coming!!!
Thoughts and Prayers ALWAYS :)
Much Love to All

Lisa Marie said...

Although it doesn't ever sound like this road is any easier for you all, I am SO happy to hear you and Adam are feeling better and more at peace today- I've been praying for peace for you both. We will continue praying for the whole family and of course Gavin. We miss seeing your smiling faces when we are up in your area. :) Hope to see you again soon. God bless! - Lisa and Mike Walk

Jessica said...

Standing...and sending prayers.

JayCee said...

"Hope" is a wonderful thing!

Kelly said...

We have hope and believe in the strength inside of Gavin...We continue to pray for the doctors to have the knowledge to make him grow stronger and stronger.

"Trust in the Lord with all your heart, Lean not on your own understanding but in All your ways acknowledge him and he Will direct your path"

It always make me feel better to say this really slowly and let it all sink in...

Our Father, who art in Heaven, Hallowed be Thy name. Thy Kingdom come. Thy Will be done on earth as it is in Heaven. Give us this day our daily bread, and forgive us our trespasses, as we forgive those who have trespassed against us. Lead us not into Temptaion but deliver us from evil. For Thine is the Kingdom and the Power and the Glory, Forever and Ever. Amen

Anonymous said...

There's no place like "hope". Continuing to pray for Gavin and your entire family. Love, The Landis family

Latte With Me said...

God's power is almighty and He knows what you need from us! People come into your life for a reason, season or lifetime. I'm glad to part of your season, if only for a very important reason!

I shared your site with my coworker and she just sat in her office and cried for y'all. She commented that she didn't know if her faith would be so strong. You're glowing with God's love and strength. And if you get discouraged - that's ok too! We'll be here to lift you up!

Simple as everything and yet all encompassing:

God knows and God cares.

Kate said...

I've been following Gavin's story for awhile, but have never commented.

I just wanted to say that I'm sorry the situation is not better, or easier.

Your faith is inspiring. Thank you for your honesty, openness & for sharing your lives with the blogging community.

You're in my prayers.

Cammie Heflin said...

I cannot believe how much his little body goes through. I am praying for your family every day, I cannot relate at all to what you deal with day in and day out, but I'm so glad that I am able to be a part of it through your blog.

MFA Mama said...

You haven't named the "bugs" but I am starting to suspect my old nemesis MRSA. I have had it twice, and having experienced septicemia I can't imagine how little Gavin keeps bouncing back the way he does. I was a grown woman of twenty-seven the first time I had it and I don't mind telling you it kicked my @SS! I really hope they are able to find something to kill whatever is growing out now and bring all of you another break from this, even just for a little while.

Tiffani said...

I don't know if you remember me...I used to comment quite often here and then my sister was diagnosed w/ cancer and our world was flipped upside down.

But, I just wanted to let you know I never stopped reading about Gavin or praying for your sweet family even though my time for commenting was nill...my kids are even praying every night for "Baby Gavin".

You inspire me to keep on keepin' on no matter the news, the hurt...the ups and downs. Give that sweet baby hugs from Georgia!


Tiffany Lockette said...

I am praying with all my heart for your little guy and your family.

Stacy Kline said...

Hi there I came across your Blog through safehavenblogspot, and you live very close to me we are in Fleetwood, Listen we will pray for your family and Gavin is such a cutie !

Baylee and Blair's page said...

We continue to pray that little Gavin will fight off these infections and gain strength!

I'm glad you guys are feeling more at peace!

Giant Hugs to you from Arkansas!