Today we spent the entire day down at DuPont. Gavin started out with labs, which came back pretty poor. His labs show that he is still pretty neutropenic -- white count at 1 and his immunoglobulin levels at 300. His hemoglobin was 5.2. SO needless to say we spent the day tanking our little fighter up. He got a hefty dose of IVIG as well as some blood. Because his levels were so low we were not actually able to give him as much blood as he usual gets in an effort to prevent any cardiac troubles, so most likely we will receive more blood next week.
Gavin's Doctor informed me that Gavin's cultures from his PICC Line are growing out two bugs, which both we transferred from his previous line that was pulled on Friday. The one bacteria looks like it has "morphed" and is now resistant to the antibiotics Gavin is on, which means another change in medication. Besides sleeping most of the day and night, Gavin is doing well. He was running fevers last night but otherwise stable.
I think Adam and I are feeling a little better today than earlier this week. Sometimes we just need to get over the shock of the things we hear coming from our Doctors mouths. We need to process and then keep on living life. We are making several changes mostly to deal with Gavin's new issue of severe immune suppression. There is talks of starting a G-CSF injection which is used in many cancer patients to boost white cell production. We are up for anything, so we'll see what the docs decide. We are also hoping to keep Gavin's Igg levels high, which will most likely mean we will be getting weekly IVIG infusions.
Thanks as always for pushing us through this past week. We never come here looking for sympathy or pity but we always find some sort of comfort in reading all the comments, knowing how many people are standing behind our little guy.