Tuesday, August 11, 2009

Tuesday...

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It has been a crazy past few days. Yesterday was jam packed with all kinds of testing to ensure that the fungus did not make it's home in other part of Gavin's body. So far things look clear and the fungus is isolated to his itty bitty sliver of jejunum and his PICC line. Yesterday Gavin received two rounds of blood and this evening he looks like a cherry tomato with bleach blond hair. It's kinda funny because even though his hemoglobin would still technically be considered anemic, he actually is as high as he typically gets even with multiple transfusions. His spleen and liver tend to just trap a lot of RBC's. In addition to the blood he also received one round of IVIG. His white count did come up to 2.0 and his ANC is 500. Not great -- but also not too bad for Gavin. He was running fevers last night but today his temps are pretty low. Besides being very cranky he seems to be doing better. He actually only slept about 18 hours in the past day, which is great considering this past few weeks.

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Our plan right now is to still sit tight and wait to see if the cultures to grow. Unfortunately just because they are currently negative doesn't mean they will stay negative. Gavin's body is overflowing with antibiotics as well as anti fungals so it may take the bacteria a good long time to grow out in a culture. We are all hoping for the best but we all understand reality. We did do cultures of both Gavin's stomach fluid and also his ostomy. The cultures were a little shocking, in that despite the antibiotics and gut decontamination meds, not to mention that fact that Gavin only has a small bit of bowel, the cultures exploded with bacteria. This is very concerning and almost guarantees infection.

Anyway -- thanks as always for thinking of us.

13 comments:

Hall Family in MD said...

Praying for Gavin and your family.

Anonymous said...

I hope this doesn't sound too bad, but I don't know a whole lot about his condition. I've been following your family for awhile and was just wondering, does he need the stomach and little bit of intestine that still spill bacteria? Maybe they serve a purpose and have to stay in there, I don't know?
Thanks and God Bless you all!!
Lou in CT

Tiffani said...

praying...always praying...

rest in this moment...

with love,

Tiffani

Karen Owens said...

@ Lou in Ct --

Yes, He does need his stomach and little bit of bowel. This is the only way for the liver to survive -- as it needs a place to drain, otherwise they would have been outta there.

Good question.

Neighbor Wars said...

Praying for your beautiful Gavin!

amy said...

still praying for your family and your little fighter.

Rachael said...

I think about you every day. Every day. I don't know how you do it. Well, I do. You just do what you have to do. Every day. Strength, mom!

The Rowe Family said...

Those pictures are so beautiful and it just breaks my heart to see this little boy go thru so much! I think you're an amazing Mommy Karen ~ I wish I could take it all away for your little man! Emily

JayCee said...

his eyes are so big & blue - gorgeous!

ISO (In search of) said...

Poor lil guy. He sure is a trooper. Praying still that Gavin snaps back into a healthy state. Hope you are getting some rest too. Hang in there.

Lorra said...

The pictures of Gavin are priceless, he is so sweet.
Dear Heavenly Father, Please restore little Gavin's body. Continue to give the doctors the wisdom to care for your precious child. Give the Owens family strength and keep them comforted. In Christ' Name. Amen

Heather said...

Sending the mighty Gavin all our love as he continues to find his way through the latest.Prayers as always.

Lisa Marie said...

Praying for you all! We love you. - The Walk family