It has been a crazy past few days. Yesterday was jam packed with all kinds of testing to ensure that the fungus did not make it's home in other part of Gavin's body. So far things look clear and the fungus is isolated to his itty bitty sliver of jejunum and his PICC line. Yesterday Gavin received two rounds of blood and this evening he looks like a cherry tomato with bleach blond hair. It's kinda funny because even though his hemoglobin would still technically be considered anemic, he actually is as high as he typically gets even with multiple transfusions. His spleen and liver tend to just trap a lot of RBC's. In addition to the blood he also received one round of IVIG. His white count did come up to 2.0 and his ANC is 500. Not great -- but also not too bad for Gavin. He was running fevers last night but today his temps are pretty low. Besides being very cranky he seems to be doing better. He actually only slept about 18 hours in the past day, which is great considering this past few weeks.
Our plan right now is to still sit tight and wait to see if the cultures to grow. Unfortunately just because they are currently negative doesn't mean they will stay negative. Gavin's body is overflowing with antibiotics as well as anti fungals so it may take the bacteria a good long time to grow out in a culture. We are all hoping for the best but we all understand reality. We did do cultures of both Gavin's stomach fluid and also his ostomy. The cultures were a little shocking, in that despite the antibiotics and gut decontamination meds, not to mention that fact that Gavin only has a small bit of bowel, the cultures exploded with bacteria. This is very concerning and almost guarantees infection.
Anyway -- thanks as always for thinking of us.