Lots of vomit. That about described our day yesterday. All of the sudden Gavin's Jejunostomy decided it no longer wanted to drain causing violent vomiting and a very unhappy Gavin. X-ray's were ordered to check for obstruction but nothing was seen on film. I have a feeling he cleared the obstruction as, without going into the gross details, I'm not sure how he was able to vomit as much as he did. Anyway -- he seems to be doing better now, though he continues to wretch and make me jump, but that's pretty much baseline for him.
Yesterday Gavin had an EEG to look into his seizure activity -- I haven't heard of those results yet. Other than all the tests being done it has been so crazy around here. I can hardly remember the days when Gavin was just a baby in the crib and little Madi was just toddling around the halls not causing too much trouble. That has all changed and needless to say raising both my children in this institution is probably the hardest challenge of Adam and I's life.
Gavin is doing better though he still struggles in many areas. Our docs are confirming our fears in that we are most likely starting to see progression of the Mitochondrial disease -- it is a nasty and unfair process that no parent should ever have to witness. His little body is just becoming tired. With that said he is still our happy boy, maybe just not as happy as he used to be.
We are almost at the 72 hour mark for negative cultures. Yippie -- I think we made it. Hopefully Gavin will be sporting a new piece of hardware in the next day or so.