Thursday, August 13, 2009

Vomit...

Lots of vomit. That about described our day yesterday. All of the sudden Gavin's Jejunostomy decided it no longer wanted to drain causing violent vomiting and a very unhappy Gavin. X-ray's were ordered to check for obstruction but nothing was seen on film. I have a feeling he cleared the obstruction as, without going into the gross details, I'm not sure how he was able to vomit as much as he did. Anyway -- he seems to be doing better now, though he continues to wretch and make me jump, but that's pretty much baseline for him.

Yesterday Gavin had an EEG to look into his seizure activity -- I haven't heard of those results yet. Other than all the tests being done it has been so crazy around here. I can hardly remember the days when Gavin was just a baby in the crib and little Madi was just toddling around the halls not causing too much trouble. That has all changed and needless to say raising both my children in this institution is probably the hardest challenge of Adam and I's life.

Gavin is doing better though he still struggles in many areas. Our docs are confirming our fears in that we are most likely starting to see progression of the Mitochondrial disease -- it is a nasty and unfair process that no parent should ever have to witness. His little body is just becoming tired. With that said he is still our happy boy, maybe just not as happy as he used to be.

We are almost at the 72 hour mark for negative cultures. Yippie -- I think we made it. Hopefully Gavin will be sporting a new piece of hardware in the next day or so.

12 comments:

Anonymous said...

Oh dear. I am without words. I just wanted you to know that I continue to pray for your family on a daily basis. God bless.

Anonymous said...

We are praying for you guys! Looking forward to when you are back home and we can plan a playdate for the kids - and time for us to catch up :) Jessica

Jessica said...

I can't even imagine what you guys are going through. Thank you for sharing glimpses of your life with us.
"Be strong and courageous. Do not be afraid or terrified because of them, for the LORD your God goes with you; he will never leave you nor forsake you." Deut. 31:6

Praising God...for defeated Bugs!
Blessings.

grey like snuffie said...

praying

Courtney said...

praying...and wish there was more i could do...

Neighbor Wars said...

I am still praying! God bless you all!

Laura said...

Still praying for you. I came across your blog from Travis Cottrell. I have been following you for a long time now and I pray for you daily. May the LORD richly bless you.

Laura from Florida

The Rowe Family said...

Thinking of Gavin and praying for you all! Is there anything I can possibly do to help??? A faithful reader, Emily

all4boys said...

Dear Heavenly Father, I lift up this precious family to You. You know that they are overwhelmed right now. And in spite of this, You are still on Your throne. Lord, give them some of Your strength. Give them supernatural wisdom, guidance, understanding and peace. When they are weak, then You are strong, Lord, and I ask that You pick them up and carry them through this time in Your mighty arms. I praise You for giving them this precious son and daughter, Lord. Thank You for blessing them with these children. In all things, Lord, let them praise You. Let them feel Your Holy Spirit around them at all times. Surround Gavin with Your angels, Father. Help him to be comfortable and well again. Let this precious angel of a son feel You, Lord, and the same for their daughter. Help them be strong, Father God. I ask this in Your precious, Holy Name, the Name of Jesus.

Anonymous said...

Oh Karen, my heart aches for you, Adam, Gavin and Maddi. May God wrap you in His grace. May you feel His comfort and love in these very difficult and trying days. I will lift you up in prayer. Joy Rota

Mia said...

I just can't imagine what your family is going through. You are in my thoughts.

Angela said...

Always thinking about and praying for you Gavin. I pray for your healing and comfort and also pray for your family's added strength. You are a fighter!