Friday, August 28, 2009

Wheelchair Swing...

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This past week we made a trip to duPont to pick up Gavin's Omegaven at the pharmacy and made a stop at the hospital playground. Thanks to my friend Kate and her incredible advocacy skills she was able to convince duPont to install this new wheelchair swing so all kids can enjoy the playground. As you can see from the photos I can only assume Gavin enjoyed it considering he was fast asleep and stayed asleep the entire ride -- with Madison's crazy pushing and all!

We got word yesterday that Gavin's blood counts are falling and we will need to come in next week for blood and maybe IVIG. Something is up with our little man, but Adam and I don't really know what. He is taking on that yellow grey shade and just looks a mess. I think it might just be fatigue but who knows. We have another two and a half weeks of antibiotics coverage so I'm praying hard that we can last at least another three weeks at home. We took cultures of Gavin's belly and bowel fluid this week so we will get a good idea just how bad the bacterial overgrowth is.

Here's to a nice relaxing weekend!

4 comments:

Jessica said...

Praying for a relaxing weekend.

Colleen said...

Cool swing!

The Rowe Family said...

Thinking of and praying for you all! It always breaks my heart to know that Gavin isn't doing well. You really can't help but fall in the love with that little man. Emily

amy said...

i second emily...you can't help but fall in love with that little man! praying his test results come back better than expected and that your family can stay home in the coming weeks!