Monday, August 31, 2009

Where Has That Smile Gone...

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Oh goodness -- Things here in the Owens' house are a bit stressful right now. Gavin is just a mess. I don't know what is going on in his little body and mind but it seriously is breaking my heart. He is so unhappy. If he is not sleeping he is screaming. It is to the point where we have to restrain both his arms and legs in order to keep him safe. I'm sure some of it is his low blood counts -- He probably feels horrible, but it just seems like something more is going on.

We have decided to have night nursing back and our poor sweet nurse has been left to deal with screaming all night long. I seriously do not know what to do. What else could be causing this extreme irritation? We did labs this morning so hopefully they will give a clue as to what is going on in his little body.

On a more positive note, we got word today that the local Ambucs is donating a special bicycle to Gavin and it is all put together and ready to go. Hopefully in the the next week or so Gavin will be sporting a new set of wheels. These bikes are pretty amazing. The bike is meant to be therapeutic and it will allow Gavin to get the motion of riding a bike without actually having to put the energy into pushing petals or steering. Can't wait to get him on that bike -- I'm sure we will have lots of photos to share!

Please keep Gavin in your prayers -- pray that we can figure out how to best handle him and all his complexities.

17 comments:

Through My Eyes said...

Hey, my name is Cory. A friend from church had given me your blogspot a while back, asking for prayer for little Gavin.
I know we've never met, but just wanted to drop a line to say that I'm praying for you all, and for little Gavin.
Blessings,
Cory
Nashville

Reagan Leigh said...

Oh poor little Gavin! It's so upsetting when these little ones get like this and then can't tell us what's going on! Prayers for that smile to come back soon and prayers for your sanity as well!

Anonymous said...

I'm so sorry Gavin is not feeling well. I hope and pray you and the doctors can figure it out and he'll be feeling better soon.
Debbie in CT

Kimberly said...

Praying for that sweet boy.

Christina said...

Praying for little Gavin & your family.
God Bless!

Rachael said...

Y'all (you, and all your family) are in my thoughts. Daily. {{hugs}}

Ashley said...

Karen,

I'm so very sorry to hear Gavin is struggling. I hope his lab work reveals the problem. I love his smile and knowing that it is missing is heartbreaking. Ash too has an Amtryke and it is an amazing little bike. She's not strong enough to make it work on her own, but we have the push handle on the back and so we strap on her little feet and hands and then she "rides". I 'm excited Gavin is getting one. Our PT is the actual inventor of the Amtryke! Its been her life's work to get them out to children and I love hearing that another kiddo will benefit from all of that hard work. We think if you guys daily and check in just as often. Take care and God bless. Trish Adams

Lindsey said...

So sorry to hear that Gavin is not doing well. It's so hard to hear them crying. Hope he enjoys his bike and that it brings some smiles. We will be praying for all of you.

Anonymous said...

This poor little guy has been through so much. I will continue to pray for him and for your whole family.

Kathy in Texas

amy said...

praying for some peace for Gavin!!

JayCee said...

Lord Jesus, please give Gavin some relief and some peace. Amen.

Anonymous said...

Praying for peace and comfort for Gavin and for the rest of the family. Enjoy the AmTryke....they are lots of fun!! Be blessed and be safe in Him....ttfn! ~Deb Heisey

Neighbor Wars said...

Praying for Gavin!

Tina said...

You guys are always in my thoughts. I hope you get some answers soon as to what is going on.

Jenkins said...

Praying for your little guy. Several months ago, someone passed along your blog when I was trying to find parents that had a child with a G-J tube. Our children's diagnosis is different but I check your blog every once in awhile.
Praying for him, for you, the family, the doctors, nurses, every one around...to have strength and wisdom. And to bring back those smiles.
Sincerely, Carrie

Anonymous said...

Been thinking of you guys tonight. Hope you get some rest tonight and some answers soon! Jessica

Anonymous said...

praying for that sweet boy too.
lynne