What a past few days we have had. We started Gavin's Oxygen about two days ago and I really think we are seeing a difference. Last night I was awakened by the baby monitor -- I heard Gavin's little voice babbling on about his Thomas movie. I have never been so happy to wake up at 2am! This is the first time I have heard Gavin say a word in several weeks, needless to say it made me take a sigh of relief. I guess I'm cautiously optimistic that it's the O2 giving Gavin the support he needs. I think his coloring is better, not so grey and I got several comments from people today commenting, "wow, his eyes are open." I'm trying not to get my hopes up, as Gavin is far from being back to his old self, but it just feels so good to see a glimmer of hope in this situation.
Today I found out that Gavin's cultures from Monday are positive for two bugs. Also found out he is in need of blood, albumin, IVIG and we are going to start the GCSF injections. Tomorrow we will spend the day at the hospital getting blood and GCSF and Friday Gavin will get the IVIG and Albumin.
We also found out that Gavin's power chair is ready to be picked up -- this Friday! Our blood pressure also went through the roof as we realized that our van is not done! We ended up using a ramp van from the dealer who will be working on our car so we will head over to the wheelchair clinic after Gavin's infusions and try out his new wheels. We have tons of anxiety about Gavin's ability to use his new chair. Gavin is a different child since we first put him in that demo. We'll see how it works out.
That's about it. Thank you all for supporting our little family.