I'm so sorry about the lack of updates. The carnival of blood products went well on Thursday and Friday. Labs were drawn yesterday so we are waiting to see how he responded to the various infusions and where his counts are at. Gavin is still fighting multiple infections and we are waiting on this last culture to determine where we will go from here. The most probable plan is that Gavin will be admitted late this week to have the central line pulled and a femoral line placed. We will then wait and pray the infection does not travel to the fem line and attempt to get a few days of negative cultures. Once we have negative cultures we will get the new central line and go home. But again this plan is not for sure.
On Friday we picked up Gavin's new wheels. I have to admit that I was very anxious getting this new chair as it kinda just further confirmed that Gavin is not the same child that he was only four months ago. The fitting was very rough and I left duPont feeling very defeated and a little sad. On the way home I really needed to get coffee to stay awake on the long drive home. Me being the crazy mother that I am got Gavin and his new wheels out of the car and went into Wawa. Well -- my heart was completed filled with joy as I watched Gavin attempt to drive the chair through Wawa. His driving wasn't perfect -- but it was an attempt, a further sign that our little boy in still inside his tired sick body. Even if I have to drive his chair most of the day it is totally worth the few moments where he can have some independence.
Another exciting thing happened today but it deserves its own post so you'll have to come back and find out!