Tuesday, September 29, 2009

Overdue Update...

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I'm so sorry about the lack of updates. The carnival of blood products went well on Thursday and Friday. Labs were drawn yesterday so we are waiting to see how he responded to the various infusions and where his counts are at. Gavin is still fighting multiple infections and we are waiting on this last culture to determine where we will go from here. The most probable plan is that Gavin will be admitted late this week to have the central line pulled and a femoral line placed. We will then wait and pray the infection does not travel to the fem line and attempt to get a few days of negative cultures. Once we have negative cultures we will get the new central line and go home. But again this plan is not for sure.

On Friday we picked up Gavin's new wheels. I have to admit that I was very anxious getting this new chair as it kinda just further confirmed that Gavin is not the same child that he was only four months ago. The fitting was very rough and I left duPont feeling very defeated and a little sad. On the way home I really needed to get coffee to stay awake on the long drive home. Me being the crazy mother that I am got Gavin and his new wheels out of the car and went into Wawa. Well -- my heart was completed filled with joy as I watched Gavin attempt to drive the chair through Wawa. His driving wasn't perfect -- but it was an attempt, a further sign that our little boy in still inside his tired sick body. Even if I have to drive his chair most of the day it is totally worth the few moments where he can have some independence.

Another exciting thing happened today but it deserves its own post so you'll have to come back and find out!

9 comments:

Reagan Leigh said...

Poor little Gavi! My heart just breaks for him. I want him to be back to his old happy self. You can just tell he doesn't feel well. But he sure does have a cool green chair! Keeping you all in my prayers!

Lisa Marie said...

We were wondering how he was doing... thank you for the update!! We've been praying. Look at his beautiful blue eyes- and that hat, is SO cute! I miss his sweet smile and hope he is feeling good again soon and enjoying his new wheels, that chair looks very cool little man! We love you all and are praying. -The Walks

John & Susan said...

What happened? We want you to post the news now.

Erin said...

Whoo! Look at those wheels, man! :) He is stylin'!

I am keeping you all in my prayers. Madison & Gavin hold a special place in my heart since my children have the same names! Keep strong little man.

Jodi R said...

Wow, that is some wheel chair! We continue to pray, especially for that smile to appear on Gavin's little face. Good luck with the new equipment :) xoxoxoxox

Heather Nicole said...

Cool new green chair! Gavin is really getting so tall - just like Dad!

Love you all, Heather

Angela said...

Oh Gavin, your new wheels rock!! Enjoy your new found freedom and we're sure that you're going to keep your mom, dad and sis on their toes chasing around after you. Our prayers,love and thoughts are always with you guys.

Bethany said...

Gavin, your new Green set of wheels absolutely rocks! I am still waiting for my purple ones, but your green ones are definitely making me think that you have the coolest chair around! Enjoy your new moments of freedom and may they grow longer and stronger. I read every update, but leave a message rarely. You and your entire family are in my prayers - prayers for peace, prayers for strength, prayers for your body to be rid of these infections, prayers of grace and mercy.

therextras said...

"it is totally worth the few moments where he can have some independence."

Yes! Priceless.

Thanking God that Gavin was able to show you the power chair is a good thing.

Glad you got home safe. Barbara