Sunday, September 20, 2009

Weekend Update...

Gavin continues to struggle through this infection. The fevers are still on and off and he had another -- even worse -- episode of dropping his O2 sats. We are waiting on oxygen to be delivered to the house and Gavin will start on O2 to help him not only maintain adequate O2 levels but also maybe, possibly give him a little more energy.

Madison had a very difficult time during Gavin's last scary low O2 episode. she ran out of the room sobbing and it broke my heart on so many levels. Pray she can cope in her own way and that Adam and I will understand what she needs and give her the best possible chance for stability.

I've had two photo sessions this weekend -- which has made me feel happy. It's been nice to escape the chaos. Tonight we have our evening nurse back and I think Adam and I are both doing a little dance for joy!

10 comments:

grey like snuffie said...

Glory...can't even imagine how Madison feels...praying God comforts her in a special way. Strength for the journey...

Cammie Heflin said...

Praying for all of you, especially Madison, what a strong girl, she has to witness a lot.

Allison said...

I will keep praying for your family.

Jessica said...

Praying for rest and strength. What a brave little girl.
Blessings.

BrunetteKoala said...

Praying, praying, praying

Anonymous said...

Bless her heart. Praying for all of you but this week I'm going to focus on little Madison. Don't worry you, Adam, and Gavin will not be forgotton.

Prayers for all,
Joy Rota

Jodi R said...

Karen, we will say some extra prayers for Madison. For your family is always in our thoughts and prayers. By the way, we wore our Gavin shirts today and they looked awesome:) Thanks for the updates, Praying for comfort and strength.

Jen said...

sorry to hear he is having a rough time.. it is hard for their siblings to handle too, my son use to leave the room any time we had to give meds or anything.. prayers for you and your family..

Jessica said...

I'm so sorry to hear about these recent struggles- imagining little Madison having to witness these events is heart-breaking :( I can't help but remember the first time I watched my daughter (as an infant) have a pro-longed O2 desat and how I wanted to run out of the room sobbing too- coping with that is definitely a tall order for a young child to face. I am praying for wisdom to help her.

At our hospital the palliative care team has a lot of "sibling" programs and therapy for families who have seriously ill children- I don't know if that is available in you area, but they are very helpful programs if so.

H said...

Praying for all of you.