Friday, October 2, 2009

Friday Update...

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I feel like I could just cut and paste about half the posts on this blog and it would apply to our day here today. It's been long and tiring. My feet hurt, my back hurts and I'm just really tired. Gavin is stable and his body seems to be happy that the infected line is out. I can't say that he is looking good, but certainly is looking better. He was awake for awhile today, though when he is awake he tends to be very agitated and combative -- I don't' blame him.

It was a really hard day for Madison and I. I can't even begin to explain how difficult it is to find balance while raising a child who although is not ill, is struggling every bit as much as her brother. She is coping very well but I just hate so much that she has to deal with these things. She is becoming so much more aware of Gavin's illness and is starting to sense on her own that her brother is not going to get better.

It really breaks my heart.


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This weekend should be very quiet. Gavin was in need of blood today but I asked them to hold off until tomorrow since he is stable. When Gavin gets blood it causes his liver and spleen to swell, as they trap the cells and causes him pain -- I just didn't want that for him today. Tomorrow I know he will need it and the poor guy also needs his flu shot.

Adam and I are so amazed everyday and the number of people who are supporting our family. At times it is overwhelming to think of the army of prayers that surround us everyday. Our words can never show how much this means to us -- and we never want you all to forget our gratefulness!



14 comments:

Anonymous said...

I like many others found your blog through other sites - for me, Travis Cottrell. Please know that your family is constantly on my mind as I have an almost 3 year old grandson, so I can relate a tiny, tiny bit to Gavin's age and needs. Humanly, there is nothing we can say other than I know God will support you and see you through this storm. Our love and prayers.

Jessica said...

Always Praying. God redeems even the things we worry about for our children...the tough stuff. The pains we wish they didn't have to experience. He holds her. He holds him. May He continue to remind you how much He loves and holds your whole family.
Praying over this weekend.
Blessings.

Anonymous said...

Still praying for your beautiful family. The Lord is close to the brokenhearted.

Shari said...

Even though I don't always comment I am always here praying for Gavi and your family.

Christina said...

Always praying here too! We are only a hop skip and a jump away.....if you need anything....... let me know.

Love from a follower in NJ.
Christina @ Pooh's Corner

Anonymous said...

praying for Gavin and your whole family -


Kathy in Texas

Heather said...

Sending our love and faithful prayers always.Keep the faith dear ones.You are all doing an amazing job under amazingly difficult,frustrating and stressful times.Thinking and praying for sweet Madison.These other little ones know so much more then they let on.We know that first hand.Love from California.

therextras said...

Wishing I had some better words than to say that Gavin and his family are included in my prayers. I am not sad for you that you have him. I thank God everyday that Gavin is here and that you share him with us.
Barbara

Baylee and Blair's page said...

I have been following your blog for quite some time. Is there anyway you could please e-mail me your address? I would like to send something to you guys! :)

Tiffany.Morris@att.net

BIG HUGS to all of you!
Tiffany

JayCee said...

Praying!

Rob, Tina and the boys said...

I know that you are busy but I have mentioned it before that my son has a letter here that he wants to send to Maddison (my son is 8). If you could email me an address of where to send it at rob tina schwartz at hotmail dot com when you get a chance, unless you are not comfortable with it and then I totally understand. We think about you guys often. Big hugs from up here in Saskatchewan.

Ellen said...

Praying as always! I wait for the day when we can see Gavin smile again! Madison is quite the trooper! Take care!

Jennifer said...

Continuing to pray for sustenance and comfort & everything else you need...

Laura said...

I check your blog every day and I pray for you and your sweet family. May the LORD richly bless you and nothing that I know really to say but just know many are praying for you.
May the LORD richly bless you.
Laura in Florida