I feel like I could just cut and paste about half the posts on this blog and it would apply to our day here today. It's been long and tiring. My feet hurt, my back hurts and I'm just really tired. Gavin is stable and his body seems to be happy that the infected line is out. I can't say that he is looking good, but certainly is looking better. He was awake for awhile today, though when he is awake he tends to be very agitated and combative -- I don't' blame him.
It was a really hard day for Madison and I. I can't even begin to explain how difficult it is to find balance while raising a child who although is not ill, is struggling every bit as much as her brother. She is coping very well but I just hate so much that she has to deal with these things. She is becoming so much more aware of Gavin's illness and is starting to sense on her own that her brother is not going to get better.
It really breaks my heart.
This weekend should be very quiet. Gavin was in need of blood today but I asked them to hold off until tomorrow since he is stable. When Gavin gets blood it causes his liver and spleen to swell, as they trap the cells and causes him pain -- I just didn't want that for him today. Tomorrow I know he will need it and the poor guy also needs his flu shot.
Adam and I are so amazed everyday and the number of people who are supporting our family. At times it is overwhelming to think of the army of prayers that surround us everyday. Our words can never show how much this means to us -- and we never want you all to forget our gratefulness!