As some of you know, one of our biggest challenges we are currently facing is our housing situation. We live in a second floor apartment and for obvious reason this living situation and haveing a child who is wheelchair dependent just doesn't mix -- not even a little bit. Everyday I load Gavin up from his crib into his old kid cart, being sure not to pull any of the various drainage bags out of his belly, trying not to rip the O2 off his face and most importantly trying to lift his heavy IV pump bag without breaking his central line, aka his life line. It's a scary frustrating thing. What is even more frustrating is that I then have to manage to get that wheelchair including Gavin and his equipment down a flight of stairs and then transferred over into his new wheelchair.
It literally makes me frazzled thinking about it -- and to think I do this several times a day. I'm not looking for pity because really, I choose to leave the house -- it's just how we roll.
Anyway the big news is that last night we signed papers on a new house! A house that through the heart of another family who has endured massive crisis is being totally renovated to meet the needs of our family. The house will be completely accessible for Gavin. I'm literally floored every time I even begin to think about the donated manpower that is coming together to make this dream a reality.
Erin and Jeff and endured such intense heart break over the past few years. Here is a small excerpt off their blog, "Most families encounter misfortune – some more than others. Against all odds, Erin and Jeff lost two beautiful children to Infant Leukemia in less than two years. They now have a third child who is also considered at risk for the same deadly disease. Every parent’s worst nightmare became reality, twice." Adam and I are grateful beyond words, and truly overwhelmed, that this family is reaching out to us and making our life a little easier -- even in the midst of their own grief and loss.
Thanks to Erin's Dream and the community around us for making this dream happen. You all are simply amazing!