Monday, October 5, 2009

Missing This Happy Boy...

-8330-8327

One of the hardest part about raising a child with a progressive illness is looking back at old photos and videos. Adam and I don't always see the small ways that Gavin is getting sicker, which I'm sure is a good thing and just another way we cope. Today I was looking through some old photos on the computer and I found these photos from only a few months ago. I really miss this kid. For sanity's sake I probably should not be looking to the past, but these are the memories I want to keep close to my heart.

Yesterday was a day I never want to repeat. Gavin was tired to the point of psychosis and nothing was helping. The morphine finally gave him the relief he needed and he slept most of the night. This morning he is still dealing with intense agitation but thankfully seems to be sleeping better, as he has been asleep for the past hour or so. We have some plans and far as making him comfortable but the docs just need to make sure nothing is going to make his other issues worse.

He continues to look more yellow today with out any answers why. I haven't heard of his bili levels today. As I kinda figured we will not be going to the OR today. Maybe tomorrow. They are trying to coordinate his bone marrow biopsy to be done the same time as then line.

17 comments:

Jen said...

I'm sorry the pics are hard to look at right now..praying he continues to rest and for continued comfort..

Susan in Canada said...

Praying for you all.

Anonymous said...

Praying continually.....
~Moses'

Heather Nicole said...

Thanks for the update...still praying.

JayCee said...

I'm so sorry!
We're praying that he will continue to get some rest and some peace.

Me and My Boys said...

I hope today is a better day. We keep on praying for you guys! Jessica

gerlacha said...

Praying guys!!!

Rachael said...

Sorry hon... {{{HUGS}}}

Anonymous said...

Praying for greater grace and peace for you and your family. Gavin's smile is so precious, thank you for sharing it with us!! Be blessed and be safe in Him. ~Debbie Heisey

Paige said...

Praying for Gavin to continue getting his rest and pain free. Simply praying.

Jennifer said...

Always praying...

Cindy Heintz said...

Praying, praying and praying...always!
Love You All

Ellen said...

Me too....always praying! When I log online to read blogs...I always check Gavins blog first!

Anonymous said...

Praying for you all!!!!!

Em
from Australia

therextras said...

Missing his happiness with you. Wishing I could do more for you. Just ask. Praying for you all daily. Barbara

Reagan Leigh said...

So tough. Thinking of you...and still praying.

Lisa Marie said...

I am so sorry that you are all so stressed and confused right now... I pray Gavin will get some rest and you all will find the answers you need. I was just telling Michael I miss his smiling pictures as well. Even though they are hard to look at, know that they are constantly warming people's hearts even still- he is so beautiful! Love and Prayers, The Walks