Monday, October 26, 2009

Monday...

Gavin's blood cultures remain positive for a bacteria that is very resistant, hence the continuing positive cultures after days on all these antibiotics.  So tomorrow Gavin will have his central line removed.  We will then hang out here for a few days with a femoral line until the cultures are clear and then we will go back to the OR on either Thursday or Friday to have a new central line placed.  


We continue to attempt to make Gavin comfortable.  Today we switch him over to a continous Morphine infusion with rescue doses if needed.  Gavin is chewing through the Morphine, so once the rate on the pump gets to a certain dose we will then switch him over to the Fentanyl patch and use the Morphine as back up.  He continues to struggle with finding rest -- but I think we are getting there. 


Today was talked about getting Hospice at home.  We are not sure how we feel about it -- I'm not sure it will fit with our way of life.  We will continue to be out and about and allow Gavin to experience everything life has to offer, so I'm not sure how hospice will play a role in our family.  But we are not closing that door -- we just want to know more about it.  I'm going to contact them next week to discuss what would be best for Gavin and our family.


Speaking of our family -- Did you remember that we are moving this weekend?  All I have to say is -- holy cow.  I'm a bit stressed but I know things will work out.  I know that help is needed at the house this week with painting and other things.  If you want to come help out in the evening go to the Gavin's House site and contact my wonderful mother Linda.

12 comments:

Cammie Heflin said...

Praying this week goes well and you can enjoy your move! I've never enjoyed a move until it's all said and done so good luck! Love you Gavin!

Anonymous said...

My nightly prayers continue for you all....ur amazing and I shared Gavin's tv spot on my facebook, I want everyone to know just how special u all are. I hope it inspires others to seek out and help one another...

Katrina

Erin said...

I have been following your blog for the past year and wow what an impact you have made on my life. I work in Hospice care in FL and know that has to be a difficult decision as many have been in your life already. I have been praying for you and your family so much and know that whatever you guys decide will be best for you and your family! Many prayers, hugs, and love sent your way!!

Lindsey said...

Personally Hospice is amazing. My dad had Hospice, and he still went places but it was amazing the support that I and my siblings got after my father passed away. It would really help Madison if you choose to do it because they really talk to the family members and make sure they are dealing with the lose properly and call just to chat after the fact. That's what I know about it, and I liked that my dad could spend his last days at home happy with the family, not stuck in a hospital.

Tina said...

I hope when you find out about Hospice you share. I'd really like to know about it. And I wish I lived closer, I would be there to help!

Lisa Marie said...

WOW so excited for your new home!

My Mom was a hospice nurse for ten years. The experiences and stories she had were incredible. As a young girl I'd go with her and meet many of her patients and families, they were always thankful for the program and tremendously happy to have their loved one with them at home at all times. I hope it works out for you if that's what you decide. I also think it would be tremendously helpful for Madison too since I even remember two young girls being so happy and at peace when their grandfather passed. We are praying for Gavin and the whole family daily.
God bless

Anonymous said...

Praying for you and your entire family. I can not imagine the decisions you are making. I have worked in Hospice for over 10 years as a social worker,though I do not work in peds. As a social worker I would imagine that they should facilitate your way of being out and about. Hospice is about living out your life comfortably, making the most of the time you have. Praying for peace and comfort for Gavin and the entire family.

Steph Sierra said...

Karen your family is in my prayers...if you need anything some one to entertain Maddie and take her mind of things..a meal ..any kind of help please let me know. Steph(Staceys sister)

JayCee said...

Wish we lived closer so we could help with the house. We are praying that your move goes well.
Prayers & Blessings to you!

Elaine said...

Karen and Adam - we're continuing to ask the Lord to be gracious to Gavin and to provide you with all the strength you need.
Our personal experience with hospice was challenging till we found the right organization. Berks VNA was not a good fit for us, but Caring Hospice could not have been better. As a matter of fact, their chaplain, not my MILs own pastor, did the funeral - he was much more invovled in her last days.

amy said...

praying that that Gavin finds rest & that your move goes smoothly. as stated before by others, your family is part of my daily prayers.

Anonymous said...

If I lived closer - I would be there in a heartbeat to help! I have followed Gavin's blog for over a year now finding you guys through Carter Cates website... I just want you to know that I have two boys 6 and 10 that just think Gavin is the cutest! We talk about your posts and how he is doing....Gavin and your whole family are in our prayers every day!

Good luck with the move - and I hope the transition goes as smooth as possible!

Praying -

Kathy in Texas