Saturday, October 24, 2009

A New Day -- A New Hope...



Today is a new day and with that I'm finding new hope -- or at least a sense of peace.  I heard it said that one of the most difficult things in a situation like ours is, "believing for a miracle while living in reality." 


So true.


Thanks for all the overwhelming support we have received via this website along with many emails.  Adam and I just couldn't do this without the support of friends, family and all the many strangers we have come to love.


So things here at duPont have been a little rough.  It is harder than you might think keeping our little man comfortable.  He's a fighter -- even if it means being in pain.  He fights through meds finding it very difficult to just rest.  It seems like after only a few days on the Narcotics he is already needing more.  Our little addict.  We will find the perfect balance of meds it just might take a little time.  Both his cultures from yesterday are growing gram negative rods.  Our plan right now it so wait and see what grows.  If it is the providencia, which has been growing very frequently we will pull the line as this particular strain of bug has mutated right before our eyes over this past year and is now resistant to many of the antibiotics and simply cannot be cleared out of his catheter.


If the line must go we will be getting a new line -- which we think will be his last line.  We are going to start with a clean line and keep Gavin on antibiotics and try to treat the bugs as they grow and as they  become resistant we will switch the meds around until we can no longer treat and then we will sadly be done, which may be tomorrow or it may be a long time away.


What that said, I am choosing life for my family -- as I hope everyone does for their own.  We will continue to live each day as it is our last.  We will look past the gloom and doom and choose to dwell on the amazing blessings God has placed in our lives.  


Today is a new day.


Today we choose life. 

32 comments:

Tina said...

You inspire me. I hope one day to meet you so I can give you the hug I really want to right now.

Jason O'Connor said...

There are no words that can make any of this easier, so all we can do is keep you in our thoughts and prayers daily. The strength of your family has always amazed me and that strength will help you through this difficult time.

Jason, Deb, Ryan, & Sam

kate. said...

How did I somehow know that you would rally with that fighting spirit of yours. It's pretty obvious where Gavin gets his will to live. I've said this before and I'll say it forever - your children are so lucky to have you. Both of you.
xoxoxo

grey like snuffie said...

AMEN

Mary Kay said...

You are always in our prayers. I know God will give you the strength you need to go through this time. LIVE EACH DAY AS IT MAY BE YOUR LAST. You are giving Gavin as much of normal life as possible to be a normal child. God has picked wonderful parents for Gavin and Maddie. No one knows what you life is like - they only see a glimpse of it in your updates. Remeber you have many friends and family that are supporting you and praying for you all. Mary Kay & Donnie (Ally's Grandparents)

Kris said...

thank you for being so honest in your posts. i simply can't imagine what life must be like right now - except that it makes me cry to read about it and i think, "surely God, you can work a miracle for this little fella?"

i don't understand God - but i do trust Him. and i know He's not on a coffee break while all of this happens. praying His peace surrounds you - and even in that, praying a miracle for your little guy.

Kathy said...

I have been reading your page for a very long time; long before you met my sister, Katie Lindemann (Alexander's mom). I just wanted to say that I have been praying for your family for so long and your son is on my prayer list at church. I just want you to know I am flooding the heavens with my prayers. My heart aches for you and I hope you know that there are so many people praying for you. Your strength amazes me and I know this will help you through this time. I wish there words that could make this easier..

MFA Mama said...

I think you are doing an amazing job caring for your sweet boy with wisdom and compassion. That is all.

JenD said...

praying

Lisa Marie said...

You are all amazing... and are in our thoughts and prayers.

Kait said...

I cry often over Gavin... I want a miracle for him, for your family, so badly. You are in my prayers every single day.

Erin Curtis said...

You found it Karen! Good job Momma. I was waiting for the words you posted today. I knew you would find this hope & love in this day. You did before, but it is different now. Very proud & I hope you can feel the fullness of your heart too. If not yet, it will come. I promise. The hurt is real, but some days I think my heart will just explode with the love Avery & Nolan gave me.

A big air hug from Erin, Jeff & Calvin.

Anonymous said...

I am privileged to witness the love and strength that your family exhibits. I can't begin to understand what your daily life is like but I am sure that God is with you and is working through you and your beautiful family. Gavin, Maddie, Adam and you are in my prayers. I will continue to do my best to support you on this most difficult journey.

Anonymous said...

His mercies are new every morning! Thank you for sharing your story here and encouraging others in the midst of your struggle. I am praying that God will strengthen you and give you peace while he comforts Gavin during this difficult time. I am reminded of the serenity prayer...God, grant me the serenity to accept the things I cannot change, the courage to change the things I can and the wisdom to know the difference. Living one day at a time, enjoying one moment at a time; accepting hardship as a pathway to peace; taking, as Jesus did this sinful world as it is, not as I would have it; trusting that you will make all things right if I surrender to Your will; so that I may be reasonably happy in this life and supremely happy with You forever in the next. Amen. Be blessed and be safe in Him.....ttfn! ~Debbie Heisey

PsychMamma said...

Is there an address where we can send a care package? Please email me @

psychmamma {at} hotmail {dot} com

Sending love, strength and peace.

ISO (In search of) said...

Just catching up and wow. My heart is breaking. My kids and I pray for your sweet family a lot and we won't stop. Hang in there.

mandie said...

i pray that the Lord will give you your miracle in whatever form He sees fit. i pray for your tough little fella and pray that the Lord gives his little body peace. i pray for maddie to feel the love from you and your husband. may she feel comforted by the King. may the Lord bless you and your family a thousand fold. may you never feel as if He has left or forsaken you (even in your darkest hour, whatever that may be). i pray for you, mama. i pray for strenghth and wisdom and peace and joy (even in the midst of all of this). i pray for joy unspeakable...and the kind of hope that can only come from Him. hang in there, mama. you have lots of warriors in Christ who are covering you and yours in prayer...

Stephanie said...

So glad to hear of your current peace. If you could, please update us about how Madison is dealing with all of this. I would like to pray specifically for her needs. Gavin is heading toward the arms of Christ. It sucks and is awesome all at the same time. Madison's healing will not be so quick, though, and I will be spending extra time on prayers for her.

therextras said...

Continuing to pray for Gavin and his family. Thankful to know you. Trying to deal with my own grief.

Barbara

tripntwinmom said...

Good for you! Making the most out of every day that you are blessed to have with that little miracle of yours.

I only hope that you have a small sense of peace in knowing that there are small groups of people all over the country rallying prayers for you and your beautiful family....

Adrienne said...

A friend of mine just sent me your blog. We know there aren't words, but wanted you to know you guys are in our family prayers. We join with you guys to choose hope and life...it doesn't mean it's easy, unfortunately we understand that, but we chose hope and found peace...and though our arms were emptied God quite literally filled us with hope and a peace we never imagined possible. Prayers for miracles and strength and peace...

Love, A family in Colorado xoxox

Anonymous said...

your guys strength amazes me everyday. I love you all! Amanda Derrick

Nicole, Drew, Jack, Megan, Sophie, and Lucy too said...

Amazing...we will continue to pray for a miracle!

Jen said...

DO NOT EVER LET THAT HOPE GO.. it is never too late for a miracle.. I prayed for one for our daughter, and for us, it was not meant.. but for Gavin, it may be his glorious "come back story"

and you are so right about choosing life..while my daughter was ill and I would slip away into my sadness, and then have to remind myself, right now is her.. right now I need to be in THIS moment..whether it was just as simple as watching her sleep or something more.. hug him, kiss him and be there to encourage him.. rally for him.. I will be lifting your family in prayer!!

jocalyn said...

Thank you. Again. For reminding me what counts.

Continued prayers for you and your precious family...

Heather said...

Continued prayers for you all as you navigate these days,with awe inspiring,unwavering faith, in a life lived fully and completely in the now.Love to the tiny but mighty one.

Heidi said...

Gavin was on my mind a lot today, continuing to pray that your sweet boy finds comfort so he can rest tonight. Many more prayers coming your way---

Julie said...

Wow, I've fianlly figured out how to post a comment. I continue to pray for your family every time I get an update on our computer. You're family is such a testimony of God's love in every situation. We love you guys, and wish we could help ease the pain. My girls are praying for little Gavin. Praying God gives you His strength through all of this, and wraps you guys in His Wings. With Love, Loren, Julie, Erika, Monica & Taylor Kulp

Anonymous said...

thinking of your family and your sweet little boy every day in st. louis, missouri.

jessica

Abby Brogan said...

Our hearts go out to you and your family during this unbelievably hard time. Gavin is incredibly lucky to have such strong and loving parents. I know none of this is easy, please know we are keeping you all in our thoughts and sending love your way.
Abby, Gib and Ellie

kid -N Around Creations said...

Our Hearts and prayers are with you and Gavin at this time. May God Bless your family and little Gavin.

The Foggs in Ashland, NH

Cindy Heintz said...

Karen & Adam.....you are doing the right thing:)
Live each day like it was the last!!! Yesterday is history,Tomorrow is a mystery, Today is a GIFT!!!
Much Love to All of you and storming Heaven with tons of Prayers ALWAYS!!!!