Today is a new day and with that I'm finding new hope -- or at least a sense of peace. I heard it said that one of the most difficult things in a situation like ours is, "believing for a miracle while living in reality."
Thanks for all the overwhelming support we have received via this website along with many emails. Adam and I just couldn't do this without the support of friends, family and all the many strangers we have come to love.
So things here at duPont have been a little rough. It is harder than you might think keeping our little man comfortable. He's a fighter -- even if it means being in pain. He fights through meds finding it very difficult to just rest. It seems like after only a few days on the Narcotics he is already needing more. Our little addict. We will find the perfect balance of meds it just might take a little time. Both his cultures from yesterday are growing gram negative rods. Our plan right now it so wait and see what grows. If it is the providencia, which has been growing very frequently we will pull the line as this particular strain of bug has mutated right before our eyes over this past year and is now resistant to many of the antibiotics and simply cannot be cleared out of his catheter.
If the line must go we will be getting a new line -- which we think will be his last line. We are going to start with a clean line and keep Gavin on antibiotics and try to treat the bugs as they grow and as they become resistant we will switch the meds around until we can no longer treat and then we will sadly be done, which may be tomorrow or it may be a long time away.
What that said, I am choosing life for my family -- as I hope everyone does for their own. We will continue to live each day as it is our last. We will look past the gloom and doom and choose to dwell on the amazing blessings God has placed in our lives.
Today is a new day.
Today we choose life.