Gavin woke this morning with a high fever. We will not being going to the OR today, as that will set us up for an infection in the new line and give us less time with Gavin. I'm feeling very relieved about this. Earlier they came in and told me that the OR called and wanted Gavin down there at 8 am.
I wasn't ready.
Emotionally I wasn't ready to do this one last time.
I know we will have to go back in a few days but I'm happy to have a few mores days looking at my babies bare chest with no plastic hanging from it. Our amazing doctor leaves for Guatemala this weekend for two weeks to do a medical mission type trip. He does this every year at a new location and every year I cringe when the day comes for him to go. He has been such an amazing support to our family, not just medically, that I begin to tremble in fear when I know I can't reach him.
This afternoon we will be sitting down with our Doc and also the doctor who will be covering him to go over all the possible issues we may have in the next two weeks and also to have a game plan. I'm not sure I could ever express to these doctors, who have really become our family, the intense impact they have made our our lives. They have taken Gavin in as their own and and choose not only to see his condition but also his spirit -- I will never forget this.